Husband not eating and losing weight steadily

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 My husband was diagnosed with Bladder Cancer in January 2022 having been treated with antibiotics for a urine infection since October 2021.  He had to have an emergency op for a twisted bowel, not related to his cancer, although he was undergoing chemotherapy at the time prior to an operation to remove his bladder, prostate and lymph nodes.  His chemo was terminated because of his twisted bowel op but rescheduled post op.  Following his bladder removal replaced with a stoma he was given the all clear in August 2022 and a decision that no further chemo was necessary.  However, in November following his first checkup, cancer of the vertabra was discovered and a decision made for him to have 5 sessions of radiotherapy pre-Christmas rather than an operation.  The radiotherapy was unsuccessful so in early January he underwent a Laminectomy and T1-T8 posterior instrumented stabilisation.  He was discharged 10 days later but was then told he has a spot of cancer on his liver and rib so chemotherapy now scheduled over a 6 month period.  He has been losing weight since his discharge from hospital and finding eating difficult so very tired all the time. His chemotherapy can’t be started until he’s stronger and in the meantime we’re worrying about whether the cancer is spreading .  He’s very depressed and I don’t know what to do to help apart from trying to encourage him to eat and try and put on weight.  Sorry this has been a long explanation but he’s been through so much over the last year is what he’s experiencing normal his consultant doesn't seem unduly concerned.  Thank you for reading.

  • Hi Hila

    Thanks for getting in touch.

    My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I am sorry to hear about the difficult cancer journey your husband and you have been through since 2022. I can imagine how challenging it must be for you both with the constant worry about further recurrences and his current health condition. Please don’t apologise for your lengthy explanation, it’s understandable.

    Here at the Macmillan, we can give general advice and support. We are independent from the NHS and don’t have access to medical records so can’t give personalised information. 

    Nutrition plays an important role when you have a cancer diagnosis. Eating problems  can affect a person’s appetite and cause unintentional weight loss which is common for cancer patients.

    If this is happening we would advise you to speak to your husbands hospital team or GP and ask for an urgent referral to a dietician for further dietary support. They all can prescribe nutritional supplements to help with your husbands calorie intake if required. We also have a build-up diet booklet that has useful tips in you may find helpful to look at.

    Your husband may find it’s easier to eat little and often and have frequent snacks rather than three meals a day. Having a full plate of food can be off putting. Some people have taste changes that puts them off eating due to the cancer itself or their treatment.

    The fatigue could possibly be due to his previous cancer treatment or due to his poor appetite. It’s a troublesome side effect and can affect, physical, emotional and mental wellbeing which might be contributing to his depression. Body changes during and after cancer treatment can affect how you feel in yourself. Managing these symptoms can be difficult if your husband has a poor appetite and not physically active.

    As there is a lot going on for your husband, we suggest contacting his team today or his GP for further support. It sounds like he needs an urgent assessment of his symptoms. We would also suggest asking the hospital team/GP to do a referral to the palliative care team. They have specialist knowledge in managing symptoms.

    If his symptoms worsen, we suggest contacting NHS111 for further medical advice.

    I can imagine the strain it’s having on you caring for your husband. It’s natural to put your husband first and forget about your own needs. It’s really important to look after yourself as caring for a loved one can be very demanding.

    Getting support is equally as important. Fight Bladder Cancer and Action Bladder Cancer UK offer a range of support and advice for patients and their families.

    You may find it helpful to talk to one of our nurses on the support line. Sometimes giving us a call can help. It’s a free phone number on 0808 808 0000 and we are here 7 days a week, 8am-8pm or email us. 

    I hope this information has been helpful, please don’t hesitate to get back in touch.

    Ref: PW/VG

    Paula-Cancer Information Nurse Specialist