Pelvic floor exercise

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Hello,

In the past 12 months I have had 4 TURBT, first also included a TURPS but prostate is benign. I have moved from grade 2 non-invasive bladder cancer to grade 3. On this journey I have also had 4 camera cytoscopy es and 6 instillations of Mitomycin C. I am currently to have 6 BCG starting later this month. Not surprisingly my bladder sphincter has taken a hammering. I have been doing pelvic floor exercises each day and taking Betmiga - 50mg mirabegron once a day for 2 months. Despite this my incontinence is getting worse. Am I doing the exercise correctly? All the apps and reading I have done suggest it is easy but I don’t think so.

I am 80yo male
I exercise daily except after operations.

Any advice, suggestions would be much appreciated

  • Hi PSOE

    Thanks for getting in touch.

    My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    Welcome to the online community. I can see you’ve joined the bladder cancer forum. I hope you’re finding it helpful to share your experiences with others.

    It sounds like you’re having a tough time after your treatments for your benign and cancer diagnosis and I can understand your concerns. It’s never easy when you’re left with troublesome side-effects which is having a detrimental impact on your quality of life.

    There are different types of urinary incontinence for men and a number factors involved.  Medication, pelvic floor exercises and Apps can help with some symptoms. However, if neither have helped, it may be worth speaking to your team again about your worsening symptoms. They are in an ideal position to review your symptoms and manage them better with a more tailored support programme.  

    In some teams there are urology nurse practitioner who manage incontinence care. They also have a specialist physiotherapist who manages pelvic floor dysfunction. It may be worthwhile seeing if your team have any of these specialists involved in patient care at your hospital and request a referral to their services.

    Prostate cancer UK offer advice and support and have a wellbeing hub, you may find helpful to look at for further support. Bladder and Bowel UK also offer incontinence advice.

    Other organisation you might find helpful are Fight Bladder Cancer or Action Bladder Cancer UK. Both offer support on living well with bladder cancer.

    You may find it helpful to talk to one of our nurses on the support line. Sometimes giving us a call can help. It’s a free phone number on 0808 808 0000 and we are here 7 days a week, 8am-8pm or email us. 

    I hope this information has been helpful, please don’t hesitate to get back in touch.

    Ref: PW/KH

    Paula-Cancer Information Nurse Specialist