Skull metastasis (from Breast Cancer)

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Hi,

My mum has stage 4 breast cancer (diagnosed Nov 23) which has spread to her skull, hip and arm.

She is on hormone treatment and also a steroid (Dexamethasone,  I think), as well as pain killer. She is getting stronger compared to November when she was struggling to walk from the pain.  She’s had a radiotherapy session on her arm, which was broken.

However we are struggling with the neurological problems. Her memory at times is bad and she has lost her facial expressions. Also acting oddly, like getting up in the middle of the night to put the washing machine on. She has lost her social compass - so can be embarrassing in public. We are finding this all more distressing than anything. 

My question is really, firstly, how do we help her? And secondly, while the steroids are releasing the pressure on her brain, and sometimes there is more clarity- and then she dips - would radiotherapy (or anything else) help? There was talk of it at the start of her diagnosis- but oncology were not hugely concerned about this aspect, and no mention since. 

thank you x

  • Hi Intergalactic,

    Welcome to the online community. My name is Anne, and I am one of the nurses on the Support Line. I’m very sorry to read of your Mum’s recent diagnosis of stage 4 breast cancer and understand this must be a difficult time for you and the family.

    You mention you are concerned about some changes in your Mum’s behaviour. I’m not sure if your Mum’s team at the Hospital are aware of these changes, but if not, please do get in touch with them today. If you are struggling to get in contact with them, please try to get in touch with her GP or 111 for further guidance.

    There can be several reasons for changes in someone’s behaviour when they have advanced cancer. When bone metastases are present, for instance, people may experience high levels of calcium in the blood (hypercalcaemia) and this can cause confusion. Your Mum is on dexamethasone which can also cause side effects such as confusion and changes in behaviour. Strong painkillers can also cause side effects including confusion and restlessness.  It is important to have your Mum’s symptoms assessed properly as soon as possible in case there are any reversible causes.

    Treatment options for skull metastases can sometimes include radiotherapy. As we are not directly involved in your Mum’s care, it is difficult to know if this may be an option for her. It may be worth asking your Mum’s team about whether this is something she may benefit from.

    Caring for a loved one with cancer can be challenging. You may wish to ask for a referral to the palliative care team, if they are not already involved. They are the experts in supporting people with life limiting conditions and can also offer support to the family.

    Take care for now,

    Anne - Cancer Information Nurse Specialist

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

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