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Hi Clbrown,

Welcome to the online community. My name is Anne, and I am one of the nurses on the Support Line. I am very sorry to read of your Mum’s situation and understand this must be a difficult time for you. I am glad you have reached out to us for more support.

It sounds as although cancer is suspected, your Mum has decided she does not wish to have any further investigations nor any treatment. Her team at the Hospital will respect her decision and can explain to you both in more detail what sort of support she can expect going forward. Although she may not have a definitive cancer diagnosis, she can still receive support in managing her symptoms and maintaining her quality of life. Although your Mum has the right to refuse treatment, it is important to remember that in doing this, she does not need to suffer.

Your Mum may find it helpful to speak to her medical team about what her wishes are. We have information on our website about what happens when someone decides they do not wish to have any treatment. This can vary slightly, depending on where she is based in the UK.

As your Mum is currently an inpatient, it would be a good idea to speak to the nurse caring for her about your concerns and ask about what sort of support she can expect should she be discharged home. If your Mum returns home, her GP is then responsible for managing any symptoms and can also refer her to further community support as there are several people involved in providing palliative care in the community. Your Mum may find it helpful to arrange a chat with her GP to better understand her needs and discuss what sort of support is in her area.

It may be upsetting for you to hear that your Mum does not wish to have any treatment. Our Support Line is open 7 days a week from 8am until 8pm if you ever feel you may benefit from a chat with one of my colleagues. Please also mention our support to your Mum too, should she ever wish to get in touch.

Take care for now,

Anne - Cancer Information Nurse Specialist

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

Ref/**LiR

Thank you Anne. Your advice is very helpful and kind. My sister and I will be following it in the coming days, particularly as we plan for the next steps and where is best for her to be right now.

C x