I’ve lived with cancer for over ten years I had a massive operation in 2018 and had lasting pain for a long time after. I was first put on Pregablin but didn’t get on with it so saw a specialist pain team and was put on a 12mg fentanyl patch. I stayed on the patches as the pain went away and only comes back if I over did it. I then had another recurrence recently that required more surgery a nurse flagged me to the pain team. Who then told me I should never have been on the patches so long and need to stop them?(no one ever told me this…tbh I think I slipped net with covid) As I was just recovering from surgery they agreed to keep me on them for a while longer till things settled down? I’m really anxious about stopping them as I tried once and had major restless leg syndrome and they keep telling me it will be hard. I’m still on 12mg. The pain consultant is so un approachable and very “old school” I feel I can’t have an open discussion with him. The rest of my team and the hospital are absolutely amazing so I don’t really want to make a fuss so hence why asking here. What can I expect?
