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Lymph node involvement and likelihood it’s stage 4

Annerkerbanna
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I’ve gone into a complete panic mode after discovering that the sentinel lymph node removed (only 1) is positive (macro) and have to have axiiary node clearance. I’ve been told that 4 lymph node positive with lead to a CT scan. I am feeling really ill thinking it’s spread further and it could be stage 4. None of my lymph nodes were enlarged on my ultrasound. How common is it for it to be metastatic?

Im almost 48, my tumour was 3.2cm and I’m er and or positive (hr+) and herceptin negative. I’ve had a lumpectomy with clear margins but they also discovered DCIS so I now have to have a mastectomy. 

I just can’t stop worrying…

  • Hi Annakerbanna,

    Thank you for contacting Macmillan Cancer Support. My name is Anne, and I am one of the nurses on the Support Line. I see you have already joined our breast cancer forum. I hope you have found it helpful and supportive so far.

    I’m sorry to read of your recent diagnosis of breast cancer and that you are now requiring further surgery, including axillary clearance and a mastectomy. This must be a difficult time for you and it’s understandable you are feeling anxious and worried about the risk of the cancer spreading.

    It is difficult for us on this platform to comment on the likelihood of the cancer having spread beyond the lymph nodes. As we are not directly involved in your healthcare, it may be best to speak to your healthcare team about this concern. Coping with uncertainty can be particularly challenging and it’s important your healthcare team are aware of your worries. Talking to your team may help give you some peace of mind and will allow you to ask more questions to better understand your situation. Your breast care nurse is well placed and can chat through the staging of the cancer with you.

    Here at Macmillan, there are several ways we can support you throughout your diagnosis and beyond. We are in partnership with Bupa who are offering free counselling over the telephone. If this is something which you feel may help you, you can either contact us on 0808 808 000 to arrange an assessment or you can book an appointment here. We can also help you to find further support in your area.

    Penny Brohn UK offer support to people with cancer and have lots of useful information on their website plus they run various online sessions which you may find helpful.

    Coping with a breast cancer diagnosis can feel overwhelming at times. Breast Cancer Now offer a service called ‘Someone Like Me’ where they put you in touch with someone who has had a similar diagnosis and understand the challenges you may be facing. Speaking to others in a similar situation can sometimes be really helpful.

    Please don’t hesitate to reach out again for more support.

    Take care for now,

    Anne - Cancer Information Nurse Specialist

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

    Ref/** HC

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