Hi there wonder if you could help me I start chemotherapy for Follicular Lymphoma soon and have Crohn's disease my immune supressants have been stopped for over month now my question is how to get myself mentally ready for chemotherapy and side effects that give me really appreciate any help in this matter thank you kind regards alan
Hi AlanS23
Thanks for getting in touch.
My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.
I am sorry hear you’ve been diagnosed with Follicular Lymphoma. It’s always difficult having two illnesses and having to stop treatment for one to start treatment for the other. I hope you’re not having too many late effects from stopping your immune suppressants.
Starting any new treatments can bring a lot of uncertainties, it’s always good to prepare yourself beforehand. As chemotherapy can bring many side-effects depending on the type prescribed, so it’s important to stay as well as you can before and during cancer treatment.
Taking a day at a time and establishing a routine may help. You may find this link helpful to look at. Eating a healthy balanced diet which is compatible with your Crohn’s and taking regular physical activity, can help minimize some of the side effects of chemotherapy.
It may be helpful to get support from a dietician to help with your dietary needs if you have any difficulties. Your team can refer you to the dietician and manage any difficult side affects you might get.
It is important to take steps to avoid infections and viruses. The nurses on the chemotherapy unit may suggest getting a thermometer whilst on treatment. It’s important knowing the signs and symptoms of an infection and who to report this to if you have any concerns. You may find our chemotherapy forum helpful to look at.
We would suggest getting a dental check-up prior to starting chemotherapy. As any dental treatment required during chemotherapy can impact on your treatment and may cause treatment delays.
It may be worthwhile contacting your team or your cancer nurse specialist prior to starting your treatment. Talking through your concerns may help as they are in an ideal position to support you more.
However, you might find it helpful to talk to one of our nurses on the support line. Sometimes giving us a call can help. It’s a free phone number on 0808 808 0000 and we are here 7 days a week, 8am-8pm or email us.
I hope this information has been helpful, please don’t hesitate to get back in touch.
Ref: PW/KM
