Family member Bile duct camcer new diagmosis

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Hi, my Mum has been in hospital over the last several weeks investigating a mass in her liver and bile duct region which they now believe is cancer following scans and suspicious 'inconclusive' biopsy results from drained fluid (ascites). 

The mass is blocking her bile duct which we were being told they were going to put a stent in to help the bile flow again which has now been cancelled as the consultant has said she needs to go on palliative care and there is nothing they can do to treat her despite being led to believe last week that they were looking at options for  a stent and chemo/ radiotherapy just last week .

Feeling very frustrated and like we have been given false hope by the medical team leading up to this

I would like to ask for advice on the best pathways for advocating on behalf of a family member and advise for liasing / requesting a second opinion from their medical team

  • Hi Violet89,

    Thanks for getting in touch.  My name is Lisa, and I’m one of the Cancer Information Nurses on the Macmillan Support Line.   I’m so sorry to hear about your mum.  I’m sure this is very upsetting for you and your family.  It is understandable that you are feeling very frustrated and that you’ve been given false hope.

    If you haven’t had the opportunity to meet with your mum’s consultant to further discuss this decision, then it might be a suggestion to try to arrange to do so as it will give you and your family an opportunity to ask questions and for the consultant to clarify as to why this decision has been made. Challenging conversations about your cancer care includes information that may be of help when speaking to the consultant.

    A number of things are considered with regards to potential treatment for cancer, which will include the type and size of the cancer and whether it has spread, the individual’s general health, and national treatment guidelines for the type of cancer. 

    You can ask for a second opinion, and our information explains how to go about this and other things to consider.  You can speak to your mum’s GP about getting a second opinion.  I’ve also included further information about understanding your cancer care rights, which you may also find helpful.

    The Patient Advice and Liaison Service (PALS) offers confidential advice and support and can help to resolve concerns or problems when using the NHS.  You can find the contact details for your nearest PALS office here.

    In addition, VoiceAbility is an independent charity that can support people with regards to decisions about their health and care. Palliative care is care that is given to improve the quality of life of people who have certain diseases, like cancer.  Palliative care nurses help to manage symptoms of cancer.

    We have a family and friends forum on our online community, which is a place to share your feelings and get support and may be helpful at this time.  We also have further information about supporting a family member with cancer.

    I hope this information is helpful.  If you have any further questions or need any further support, please don’t hesitate to get back in touch. You can speak with the Macmillan Support Line on 0808 808 0000.  We are here 7 days a week, from 8am until 8pm, or send us an email.

    Take care and best wishes,

    Lisa
    Cancer Information Nurse Specialist

    Ref:  KE/LiR