I have just been started on Creon 10000 of which I take with meals 50,000 and 20,000 with snacks .my daughter is complaining of my personal smell and offensive gas problems.but I know it's the Creon working.plus my stools have changed in every way.i have to sit with a can of air freshener.Does this settle down after a while. It is really upsetting me as she is in denial anyway about the cancer and having this on top is breaking me.
Hi Cathy62
Thanks for getting in touch.
My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.
I can see you have joined our online forums. I hope you’re finding it helpful to share your experiences with others.
I am sorry to hear how upset you are about your daughters’ comments and feel she is in possible denial about your cancer diagnosis. I am glad you have contacted us so that we can offer you advice and support around this.
Getting a cancer diagnosis and experiencing the side-effects of treatment can be difficult for many people to cope with, especially family members. Some relatives are accepting of the diagnosis and others struggle as that relationship they once had may have changed.
It may be worth talking to your daughter about how you’re feeling and explain how much her comments are upsetting you. Being open and honest might help as sitting with a can of air freshener isn’t ideal going forward in this situation.
Creon can cause some of the symptoms you’re having, and those symptoms may get better or remain the same. It might be helpful to write down any digestive problems your having, including what you’re eating, Creon dose and what side effects you’re currently having. This will be helpful to discuss with your team.
However, if you have any new, increasing, or worsening symptoms it is always important to report these to your GP or your hospital team as soon as possible. They will be able to assess you and decide if the Creon dose is right for you or needs to be adjusted slightly. They could also refer you to a dietician for advice.
You can also contact your consultant’s secretary to report any concerns/questions you may have. They can pass any questions or concerns directly on to your consultant or Clinical Nurse Specialist (CNS). Pancreatic Cancer UK also offer a good support network.
You may find it more helpful to speak to one of our nurses on the support line. Sometimes giving us a call can help. It’s a free phone number on 0808 808 0000 and we are here 7 days a week, 8am-8pm or email us.
Ref: PW/JD
Regards
