Colon cancer plus or minus lung nodule- My dad

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Hi there, 

I'm after some advise. My dad was diagnosed with a colon tumour in June. On cancer staging imaging a lung nodule was also found that is suspicious of a metastatic lesion. With the complexity of my dad's medical history, colon surgery is too risky. My dad is 65, had a review with anesthetics who also agree that surgery is too risky. He has had discussions with regards to alternative treatment with chemo and radiotherapy but due to his medical history it seems this option will make him extremely poorly and he feels this isn't something he wants to do. He was told yesterday from the colorectal team that as he has decided not to have treatment they no longer need to see him. No follow ups. I was surprised by this. They have said he is now under yhe care of his GP. We're assuming there is no alternative option. I couldnt make it to his last appointment with him and this im struggling with as i feel i didnt get to ask about whetherthere are any other alternatives. I was wondering whether there is an alternative care pathway team that he could be under? He is awaiting a follow up for the lung nodule, they want to biopsy but even this poses risks, which my dad doesn't want to put himself through so it's likely he will be discharged from them too.

At present my dad feels well in himself but has had a few different infections recently (bowel and leg). He is also experiencing loss of rectal blood. He is on waffarin so my worry is that a rectal bleed could easily escalate. 

Just wondering what care pathway options there might be for him going forward. As symptoms progress, is it correct that the care under the GP is the best option? What if he requires therapeutic intervention (colon stent)? 

Any advise would be greatly recieved 

BW

Zoe W 

  • Hi Zoe W, 

    Thank you for contacting us and welcome to the online community. I hope you find this a helpful and supportive space. My name is Lynsay, and I am one of the information nurses with Macmillan Cancer Support. 

    I am sorry to hear about your dad. It can be really difficult being unable to have surgery and making the decision not to have other treatments like radiotherapy and chemotherapy due to having other health conditions. 

    As your dad isn’t going to have active treatment, this would mean that his care would be transferred back to the GP. Essentially the care pathway your dad is now on is the palliative care pathway. Palliative care refers to physical, emotional, and practical support for people with a life limiting condition.  

    Palliative care is often confused with end-of-life care, but it is different, palliative care can go on for a long time and is appropriate as soon as someone is diagnosed with a life limiting condition, while end of life care usually only refers to the last weeks of life. 

    Palliative care doesn’t exclude any treatment options and can include active treatments with the view to improving symptoms. This would absolutely include therapeutic interventions such as stenting if this were indicated. 

    Within the community there are palliative care teams which include specialist palliative care nurses and palliative care doctors. They work closely with the GP to ensure your dad’s symptoms are managed as effectively as possible.  

    Referral into the palliative care service can be done through your dads GP. Palliative care can be organised slightly differently in different areas so my best advice would be for your dad to arrange an appointment with his GP to discuss the palliative care service in the local area and referral into this. 

    It would also be useful to ask about how GP support is organised for your dad. We would encourage to ask if there will be regular contact from the GP or if the contact will have to come from your dad to the GP as needed. If the contact comes from your dad, is there a system in place where your dad will not have to wait for extended periods of time for an appointment due to his diagnosis. 

    I also appreciate your concern about potential excessive bleeding as your dad is on warfarin, the GP can review this and determine if there are any options to help limit the risks associated with this. 

    I do hope this information is helpful but please know that you can call one of our nurses to discuss things further. 

    Take care and best wishes, 

     Lynsay 

    (Cancer Information Nurse Specialist) 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.  

    Ref LA/LJ