I had an abdominal biopsy 2 weeks ago due to possible peritoneal mesothelioma..(.I have BAP1 Tumour Predisposition Syndrome), have had
previous kidney cancer and my Mum passed last year from Peritoneal Mesothelioma.
I also have a pleural effusion which I will be having VATS surgery on.
I telephoned the consultants secretary yesterday to see if the results of the biopsy were back...they are...she booked me in to get them next Weds...( 7 days time).
The anxiety I am experiencing is all encompassing.
The abdominal tumour was found on an MRI scan in June and the pleural effusion in August.
We are now in October and I am non the wiser.
I telephoned my consultant's secretary today to ask if I could have a phonecall telling me the results. She said the consultant prefers face to face.
I explained the waiting is worse than actually being given bad news ( from personal experience).
She said she would send an email to the consultant.
My question is ;
Do the results belong to the hospital or me?
If me, surely I can decide how I want to access them? Patient led care and all that?
Do you know the law around this area?