I have been told (verbally) that I have breast cancer and apparently it has metastasized. I’ve had biopsies and tests and soon to have an MRI and some kind of PET Scan. The only Consultant I’ve seen is a Breast Surgeon and I’m being fast tracked for chemo. and double mastectomy. Can I ask for a formal letter of diagnosis and results of tests before agreeing to treatment.
Dear Tadp,
I am sorry to hear about your diagnosis and that you have received limited information so far. My name is Penelope, and I am one of the Cancer Information Nurse Specialists. Welcome to the online community. I hope you find it informative and supportive.
A diagnosis of cancer can be overwhelming, and it may have been difficult to take in any verbal information given. This is completely normal. It is usual for appointments (such as the one with the breast surgeon) to be followed up with a letter to your GP. Some hospitals automatically copy the patient into these letters. If this is not happening at present, then you can ask your consultant’s secretary for a copy. In some areas patients can access their records electronically and view copies of letters. Your GP surgery will be able to tell you if this is an option for you.
No treatment can be given without your consent. Consent can be given verbally but there is often a written consent form that states the purpose of the treatment and possible side effects. Our information on giving your consent outlines what to expect from this conversation. A full understanding of your diagnosis and the treatment plan is an important part of giving consent. We would also expect that the breast cancer team would talk through your test results with you. Commonly this conversation would also be summarised in a letter which you should also be able to get a copy of.
I hope that the above answers the question that you posted. You may like to give us a ring on the Macmillan Support Line for further support. We are available every day from 8am to 8pm on 0808 808 00 00. To speak to one of the nurses you select Option 1 for the support line and then Option 3 to speak to a nurse.
For information specific to your diagnosis, you may have been given a contact number of a breast care nurse. Their role is to support you in understanding your diagnosis and treatment. They may also be able to help with your query about the letter of diagnosis. You could try to get in touch with them today if you have the number. The hospital switchboard should be able to find their contact details for you if necessary.
Whilst you are waiting for further tests and results you may like to look at our information get help from Macmillan about all the ways we can help. Many people also find our online community forums like the breast cancer forum a valuable source of support from others with a diagnosis of breast cancer. Breast Cancer Now also provide information and support.
Best wishes
Penelope, Cancer Information Nurse Specialist
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
Ref/ CF
