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Prostate cancer with Crohn’s

Jonnymac22
  • 3 replies
  • 43 subscribers
  • 479 views

Hi , I have prostate cancer 3+4=7 locally advanced, I’m on my third monthly HT jab Friday , as I have Crohn’s I have had to have a colonoscopy to determine if the Crohn’s is active so I can have any treatments, a professor won’t do an Opp and radiotherapy consultant said same as it’s deemed too risky and risk of death !!, so this morning’s appointments with them only got we need a second opinion from Leeds Hospital consultant, so now I have to wait again to see if I can get this thing out of me soon as , is there anyone on here who has Crohn’s and prostrate cancer as I’m so confused about it all , thanks Jonny Mac 

  • Hi Jonny Mac,

    Thanks for getting in touch, and welcome to our online community.

    My name is Carole and I’m one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    We know that being treated for cancer can often be an overwhelming and confusing experience. Clinic appointments can be short and it’s not unusual to have lots of questions after a consultation. If you have a clinical nurse specialist (CNS), you could give them a call. If you haven’t, your consultant’s secretary should be able to arrange for you to speak again to a healthcare professional within the hospital team. If you’d like any tips on talking to healthcare staff, we have this information on our website.

    We don’t have access to medical notes, but can often provide general information, and we can always listen. Sometimes it’s just helpful to talk over what’s happening.

    I can see from your profile that you’ve joined our Prostate cancer forum. You could post a message on there, and ask if like you, any other members have Crohn’s disease.

    If you’d prefer to speak to someone over the phone, Prostate Cancer UK have a one-to-one support service. The support is provided by trained volunteers who can listen to your issues and concerns and share their own personal experience with you.

    I hope this helps.

    Best wishes,

    Carole

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. 

    Our ref: EM

  • in reply to Carole F - Macmillan

    Good morning, I’d already posted had any one on the site got Crohn’s, but no one had 

    Cheers , Jonny mac

  • in reply to Jonnymac22

    Hello Jonnymac22

    Thanks for getting back in touch. My name is Helen, I’m one of the Cancer Information Nurses on the Macmillan Support Line.

    I was sorry to read that you weren't able to find a member of Macmillan's prostate cancer online community that also has Crohn's disease.

    I wondered if posting your query on Prostate Cancer UK's online community, may yield a result for you. I do hope so.

    Please don’t hesitate to get back in contact by email, webchat or phone, if you need further information or support.

    The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks on 0808 808 00 00, 7 days a week, 8am – 8pm.

     

    Best wishes, Helen

    Cancer Information Nurse Specialist 

     

    Ref HM 

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