Hi I recently had a LAMN appendix tumor removed and hemicolectomy. I’m struggling to find support groups for people who have experienced similar.
im also wondering what the recovery process should look like. I’m 4 months post op and still struggling with lethargy and haven’t got back to my old exercise routine.
I also feel very bloated and hoped this would’ve subsided by now.
please could you advise on the recovery period? Is there anything I can do to help the recovery ?
Hi Torrrrrrr,
Thanks for getting in touch.
My name is Eileen, and I am one of the Cancer Information Nurse Specialists working on the Macmillan support line.
I see you’ve joined our pseudomyxoma peritonei forum and I hope you find this a supportive space to connect with others.
I can appreciate when you have been diagnosed with a rarer condition such as LAMN it can be difficult accessing support groups. Pseudomyxoma Survivor, is an online support network for people affected by pseudomyxoma, appendiceal tumours and rare peritoneal malignancies. You may find this helpful as they offer practical and emotional support.
It's not uncommon for people to continue to experience lethargy/fatigue for several months following the type of surgery you’ve had. We would expect your ability to tolerate activity to increase gradually in the months following surgery. If your energy levels are not improving, contact your GP or treatment team at the hospital. They may check to make sure you are not anaemic which we know can contribute to fatigue.
You have asked if there is anything you can do to help your recovery, the general advice in terms of aiding your recovery is to try to eat a healthy well balanced diet, get a good amount of sleep and try to gradually increase the amount of exercise you are taking.
Regarding the bloating you are experiencing, some people do experience bowel changes following surgery which can include bloating. This may improve with steps such as cooking and chewing food well and taking peppermint or fennel tea. If these measures don’t help, please speak to your treatment team at the hospital.
I hope this information has been helpful but please know that you can call one of our nurses to discuss things further.
Take care and best wishes,
Eileen
(Cancer Information Nurse Specialist)
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
Ref: LD
