I have my sen sura mio Coloplast Nephrostomy bag stuck to my back on my right side as my bladder cancer has blocked both ureter tubes .This is changed weekly by a district nurse .Is there a video showing best practice how this procedure should be carried out ? This would be very useful to have .
Kind regards.
Hi GWW,
Thanks for getting in touch and a warm welcome to the Online Community. I’m Heidi one of the Cancer Information Nurses here on the Macmillan Support Line.
Thank you for your question about best practice.
You mentioned that a district nurse changes the nephrostomy bag weekly and that the make is SenSura Mio. Coloplast, who manufacture SenSura Mio, have a customer support line which includes a Dedicated Nurse Helpline. Although I couldn’t find a video on their website, your district nurse may be able to contact Coloplast to see what resources they are able to provide.
The Royal Marsden NHS Foundation Trust has information which you might find helpful. The short video provided on their webpage guides you through how to care for your nephrostomy.
Nephrostomy systems may differ so please do check any guides with your district nurse or specialist team to make sure they are appropriate for you.
Sometimes talking to others can be helpful and you might like to explore our welcoming and supportive bladder cancer forum. You can also check our webpage to find details of support and information organisations in your area
You can also find a list of bladder cancer resources and support organisations on the Cancer Research UK website.
I hope this provides a starting point, please don’t hesitate to get in touch again if we can support you further.
With very best wishes
Heidi
Cancer Information Nurse Specialist
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us.
Ref/VG/HC
