Lymphedema after breast cancer

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Hi there, hoping you can provide some advice. My mum has mild lymphedema in her left arm where lypmh nodes were removed from her underarm at the time of breast conserving surgery following chemo for breast cancer last year (her surgery was in June 2022).

She has a compression garment which works well for her during the night. However a month ago she lifted a heavy suitcase using her non-affected arm and ever since this has been painful for her and displaying similar symptoms of lymphedema. She originally thought she may have pulled a muscle but it's been a month now so perhaps not.

It's sore to move and the pain is mostly in her upper arm but does move down. It is also causes her problems at night. At her last lymphedema clinic appt she was signed off but when they took measurements of both her arms, the right one (which is currently the sore one) was slightly swollen than the affected arm. Therefore I wondered if it is possible to get lymphedema in your non-affected arm too?

She currently has high blood pressure too and her practice nurse increased her blood pressure tablet dosage up from 5mg to 7.5mg last Thurs. I'm trying to establish what is wrong with her arm as I know it's causing her discomfort. She intends to go to her local lymphedema drop-in clinic on Wed to see what they say but I'd be so grateful for any help/advice you can give me and my mum x

  • Hi LWT81,

    Thanks for getting in touch and welcome to the online community. My name is Jo and I’m one of the Cancer Information Nurses on the Macmillan Support Line.

    I’m sorry to hear that your mum is experiencing mild lymphoedema following surgery for breast cancer last year. Also, that she now has pain and slight swelling in her unaffected arm which you are concerned could be symptoms of lymphoedema.

    From the information you have given it would be difficult to know what is causing the symptoms. It sounds as though attending the local lymphoedema drop-in clinic on Wednesday would be useful.

    I wonder also whether your mum has spoken to her hospital team about this. If not, then it would be advisable to do so. It is always a good idea to let them know about any new or worsening symptoms or concerns. They are best placed to offer specific advice and support as they are familiar with your mum’s diagnosis and have access to her medical records.

    If she has the contact number for a breast care nurse within the team, then she could give them a call in the first instance.

    There is further information and support available through our lymphoedema forum and the lymphoedema support network.

    If you have any further questions, please don’t hesitate to get back in touch. You can speak with the Macmillan Support Line on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

    I hope this information is helpful.

    Best wishes,

    Jo

    Cancer Information Nurse Specialist

    Ref: JD/LZD