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TRT Treatments

SimonB23
  • 1 reply
  • 43 subscribers
  • 462 views

I'm currently on nebido injections, which initially started off as a 12 weekly cycle, this was changed in Dec 2022 to every 10 weeks as my testosterone levels was 4.6 n/mol a lot lower than normal levels. 

I'm now feeling really low again and currently awaiting blood tests to confirm my levels for next steps.

Is it normal for my levels to constantly be dipping low? is there anything i can do to maintain my levels as these episodes of low T is really hard, I'm feeling very depressed at the moment.

Are there any other options than nebido?

  • Hello SimonB23,

    Thanks for getting in touch. My name is Denise, I’m one of the Cancer Information Nurses on the Macmillan Support Line.

    Thank you for getting in touch on our Online Community, I’ve noticed you have also joined another forum group and hope you are finding it supportive and helpful.

    I am sorry to read about your struggle with low testosterone levels and feeling low as a result. It is not unusual for one medication to stop working and needing and alternative instead. You are doing the right thing to get your hormone levels checked and finding an alternative to Nebido if that is proven to be no longer working. I understand this must be a very upsetting time for you.

    The different types of hormone replacement therapies are listed on the Orchid fighting male cancer website and you can access it by clicking here.

    There are strategies listed such as physical exercise, good sleeping habits, avoid stressful situation and practice relaxation techniques such as deep breathing, avoid alcohol and try to eat a healthy balanced diet which may help to increase your wellbeing.

     

    In the meantime while you are waiting for your results and discussion with your consultant, as you mentioned you are struggling with low mood you can try to have a look at BigHealth mental health support or sign up for free counselling and see if that would be of any benefit to you.

    You have not mentioned if you have been in touch with your GP about how you feel, if you have not, if I may suggest let your GP know so they can assess you appropriately and offer you support.

    I hope this information is useful. Please don’t hesitate to get back in contact by email, webchat or phone, if you need further information or support.

     

    The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00, 7 days a week, 8am – 8pm.

     

    Best wishes, Denise

     

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

     

    Ref/DK/KE

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