Utterly Overwhelmed

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Hi. I'm new to this group and hoping to learn a lot from your experiences.

I'm in my thirties, recently diagnosed with invasive carcinoma with mucinous features in the right breast. A shock to my system! Tumor is more than 3cm, and I'm just under a B cup size. I'm grappling with the decision to make on the way forward. 

(1) lumpectomy with sentinel lymph node biopsy, followed by radiation, oncotype DX test and hormone therapy. This will leave a scar across my boob and require potential fat graph given that the right boob will be smaller and look oblong to the left because of the size of the tumor relative to cup size. If more cancer is found in the safety margin I'm told a second excision may be necessary. This will leave me with very little tissue and a much smaller right boob which may lead to mastectomy after all that

(2) single mastectomy with expander whilst radiation is administered, if required after sentinel lymph node biopsy. Wait approx 6 months to insert implant. Risk here the left boob will eventually grow naturally and sag against a perky one. Risk of recurrence in the left especially if BRCA gene positive

(3) double mastectomy. With much of the same above except less risk of recurrence and more chance of symmetrical boobs. Trouble is how do you deal with no feeling or sensation - having a prosthetic chest as a woman 

I'm advised that the treatment that follows is all dependent on the choice I make now. I have initiated a BRCA gene test and waiting for those results. PET CT showed no spread. 

Any advice on how to make this decision. I feel utterly overwhelmed and confused. I'm quite fed up of being invaded, touched, poked and prodded already and I haven't even begun my treatment! 

  • Dear  

    Thank you for getting in touch with us and welcome to our Online Community. I’m Sue and I’m one of the information nurses on the Support Line. I’ve noticed you have also joined the Breast cancer forum which I hope you find helpful and supportive.

    I’m sorry to hear you have recently been diagnosed with invasive breast cancer. This must understandably be such an emotionally difficult time for you, we’re glad you have reached out for some support. Being diagnosed with cancer can create a whirlwind of emotions and uncertainties, there is no right or wrong way to feel and it’s completely natural that you may be struggling and feeling overwhelmed and confused.

    Going through the different tests and investigations you have been through as part of your diagnosis can also be personally difficult, it’s not surprising you are feeling this way prior to you starting your treatment. But it’s important for these tests to be done in order for the consultant to gain as much information as possible, to help them plan treatment.

    Although there are lots of different treatments available for breast cancer, making an individual decision about which one to choose can be difficult. It’s really important for you to have as much information and understanding about your individual diagnosis and treatment options in order to help you make an informed choice. You’ve also mentioned you are waiting for the results of your BRCA gene testing which may also help towards this.

    We would always encourage you to continue to discuss any uncertainties about your treatment decisions with your hospital consultant and breast care nurse as they know you best and will be able to continue to support you. As nurses on the Support line, we are unable to offer specific, individual advice about treatment decisions and we don’t have access to NHS medical records. We do however, offer some general information which you may find helpful including questions to ask about treatment and making treatment decisions.

    The charity Breast Cancer Now, also offers lots of information and support, including a breast cancer forum, similar to our Online Community, there is also a Support line where you can speak with the breast care nurses. Sometimes being able to access lots of different forms of support can really help and speaking with others going through similar experiences can be invaluable.

    You are also more than welcome to call our nurses and talk through everything that is happening, we will be more than happy to listen and support you.

    I hope this information is helpful. If you have any further questions, please get in touch by email, webchat or phone. The Macmillan Support Line offers practical, clinical, financial, and emotional support. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00, 7 days a week, 8am – 8pm.

    Ref: JD/SMG

    Sue -Cancer Information Nurse Specialist 

    Sue Cancer Information Nurse Specialist