What happens after tamoxifen?

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Hi

This year will be 10 years since my breast cancer diagnosis.

I was 37 when I was diagnosed, I had chemo, radio and a lumpectomy. I was then put on tamoxifen for 10 years.

During the past 10 years I have had classic menopausal symptoms and my periods have stopped.

I am becoming a bit anxious about not having the protection of tamoxifen when it comes to an end this year. (Although I do realise it can’t be prescribed for longer than this due to it becoming a risk to other areas of the body).

my questions are;

1.Has the effects of chemotherapy and tamoxifen brought about a ‘fake’ menopause (and when my body is tamoxifen-free, will my hormones bounce back and I will then have to go through a ‘real’ menopause at some point? (I hope I’ve had the real thing!).

2.If my hormones bounce back, is there anything else I can take to prevent the cancer coming back? (As my breast cancer was hormonal). Will I be more at risk? Or should I take comfort in knowing it has been 10 years, so the risk has reduced over time?

Anxiety has been one of the worst parts of this disease. It’s the classic ‘what if’ questions that I try not to dwell on.

thanks in advance for your advice/ support.

clare

  • Hi Clare Poppy

    Thanks for getting in touch and welcome to the Macmillan online community. I hope you find it supportive.

    In answer to your questions. Generally, if you haven’t gone through the menopause naturally whilst taking tamoxifen, then your periods will start again once you stop taking the drug. It may take a few months for your periods to become regular again. The side effects of taking tamoxifen can hide the signs of a natural menopause.  It may be that it’s only when you finish taking it that you find you have started your menopause.

    It’s natural to worry about the cancer coming back. It’s important to know what signs to look out for. As you said, by taking the tamoxifen your risk has reduced. However, this doesn’t always reduce the anxiety felt. Focussing on your health is one way to manage this.

    Breast Cancer Now have the Becca app which offers support and information.

    Mission remission is a helpful site for people managing life after cancer treatment. We also have an online community group life after cancer that may offer you support, friendship and advice from others going through a similar experience. Many people find this kind of support invaluable.

    We also offer free specialist counselling to anyone who has had a cancer diagnosis which may be useful to help you manage any anxiety and worry around these issues.

    I hope this information helps. Please feel free to get back in touch if you want more information or support.

    Best wishes,

    Fiona M,

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/AP

  • Thank you. I may try one of these groups you suggested 
    Clare