My husband has terminal liver cancer (HCC). He’s was diagnosed just after Christmas and is currently undergoing immunotherapy. He has had two treatments so far and his third is next week. We do not know how long he has left as we have asked not to be told until it becomes absolutely necessary.
He has had the following side effects: tiredness, worsened arthritic pain, brain fog/lack of concentration, low moods including feelings of uselessness, and lack of appetite which has resulted in quite a bit of weight loss (5.1/2 pounds in the last week). He normally has too good an appetite so this is a huge change for him.
in addition, he beat prostate cancer last year but it has left him with what he describes as urethral pain which is mostly bad when he is sat.
He takes co-codamol or paracetemol for his other pain but it doesn’t do much for the urethral pain.
So really I need to know
1. How on Earth do I support him through his low moods, other than breaking down and crying with him.
2. How do I make sure he eats properly
3. Who do I speak to about the above two questions and the urethral pain as it’s really getting him down and I don’t know what to do.
He has a consultant and a MacMillan nurse but I’m not sure where to turn as it’s all so new, and I’m struggling too.
Many thanks
