Hi - thanks so much in advance - I’m waiting to speak with my endocrinologist but hoping for some advice whilst I wait.
I’ve had acromegaly for nearly 20 years, had 2x surgery and have been on Pegvisamont ever since. I’m probably going to have more surgery in the next few months as the tumour is still active/growing so they’re hoping to be curative this time.
I’ve only just (mad given I’ve had this for years and sort of thought I knew it all!) realised that a core symptom of acromegaly is gastro issues and I’ve been struggling massively with these for years. I’ve been taking lansprazole for years due to constant heartburn and am also on a drug to assist with over active bladder. I didn’t know however that constipation was also a symptom and this is what I’m really struggling with! I don’t drink much water (because it causes bladder issues) but then this must exacerbate the constipation? All constipation medication says it’s dangerous to take long term - but I really need something to help as it’s causing me really bad mental health issues. I’m terrified to go to the loo in my house as every time I do it blocks the toilet and I’m so embarrassed about it.
Could you advise/suggest anything I can do to help relieve the constipation? I’ve tried diet, exercise etc etc but all these are so much harder with acromegaly that it feels like a losing battle! If I drink more water then I’m constantly terrified of making it to the loo in time but then I’m equally terrified of going to the loo and blocking it!!
Thank you!
