Grade 1v bosnaik cyst

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Hello I was admitted to hospital on 21 Dec 2022 with DKA and was very very poorly was in icu for 7 days then up to side room until 9 January 2023. They actually discovered the cyst accidentally but did ultrasound and CT and discovered it’s stage 1V so the consultant told me they would take the kidney out and they were gonna move quick.I was to get a ct of my chest area to see if it had spread so I lay in waiting for this for days and thinking good they are just gonna get rid of it then 4 days later the consultant came and told me he was happy to discharge me I said what do you mean you said you were taking my kidney out he said yes but I have put it as urgent for urology so you will go as an outpatient and probably be seen in 1 weeks time (found out they needed my bed) so no appointment appeared I called his secretary and explained she got me one for 8 Feb 2023 for consultation. A little bit about the cyst :  cystic lesion(37mmx28mmx20mm) is seen arising from the medial interpolation region of left kidney with thick irregular enhancing wall showing areas of convex modular protrusion appearance is in keeping with bosnaik grade 1V cyst Renal MDT recommended. Clearly I’m in disbelief I don’t know what to think am I fine or is this serious??im really in a daze tbh and a bit annoyed that he discharged me can you please shed some light on the matter many thanks Gina

  • Morning ,

    Thanks for reaching out to Macmillan Cancer Support and welcome to our online community. My name is Amy, and I am one of the nurses on the support line.

    It sounds like you’ve had an incredibly difficult month Gina, with the ITU admission for DKA and now the incidental finding of a renal cyst. It’s only natural to feel dazed by it all. 

    I appreciate your confusion in being told this is urgent and then getting discharged home. This can feel like a contradiction. These two health issues are different and although, yes cancer needs to be treated with a level of urgency, it’s important to remember most people are still living at home and attending appointments, going for scans and treatment from home. We wouldn’t expect a cancer to change significantly within a few short weeks or even months. And the waiting times from referral for suspected cancer to starting treatment is 62 days.

    It would be unlikely, even if beds were available, for you to stay in hospital and wait for a urology review. The only time you may be kept in hospital is if you remain medically unfit for discharge, whether that be from your initial presenting complaint (DKA) or any new complication or diagnosis (Renal Cyst).

    This doesn’t make the waiting any easier, but hopefully knowing it would be normal practice to discharge and refer as an outpatient helps.

    We also have up to date information about cancer waiting times. This includes support available to help you cope while waiting, tips for looking after your physical health and wellbeing and what you can do if you are concerned about the quality of your care (raising your voice toolkit).

    If you notice any new, changing or worsening symptoms before your appointment on the 8th February you can get in touch with your GP or the urology secretary to let them know of your concerns.

    I hope this helps and please do get back in touch if you need any more information or support.

    Best wishes,

    Amy C, Cancer Information Nurse Specialist                                                                                   

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

    Ref:AC/SMc

     

  • Hi Thankyou for the reply you misunderstood me I was wondering with the description of the stage 1v is it cancer 

  • Hi  ,

    Thanks for getting back in touch and please accept my apologies in misunderstanding your question. I will answer your question here rather than posting on the new post.

    The urology team you have been referred to will give you a greater explanation about whether this is a cancer or not. Unfortunately, we cannot access medical records or diagnosis on this platform.

    Radiopaedia.org is a website which helps to explain some of the common terminology radiographers use to help diagnose conditions.  

    The following information would suggest that it likely is a cancer.  .

    Bosniak IV

    • clearly malignant cystic mass
    • Bosniak III criteria + enhancing soft tissue components adjacent to but independent of wall or septum
    • treatment: partial or total nephrectomy
    • percentage malignant: ~100% ref

     

    I hope this helps answer your question.

    You know where we are if you need any further information and support

    Best wishes,

    Amy C, Cancer Information Nurse Specialist

                                                                                         

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

     

    Ref:AC/SMc