NJ tube medication blockages

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Since an eldery member of my family had an nasojejunal (NJ) tube fitted, it has become severely blocked several times (requiring admission via A & E and a hospital stay whilst they wait for a tube replacement). On each occasion it appears to have been directly linked to prescribed medication (for general health conditions not related to the cancer), despite the administering instructions being followed, and flushing well before and after each dose. Sometimes we're told by the medical professionals we encounter once the tube is blocked, that the formulation of medication we were prescribed, shouldn't have been used with a small-bore NJ tube at all. Although the medications being prescribed are supposedly in liquid form, they never seem to be truly liquid, but rather suspensions that don't dissolve in water, or the granular contents of capsules that don't properly disperse within water. We're desperate to reduce the number of blockages; it's getting to the point where taking any medication fills us with dread! There seems to be very little definitive information available, and the decision of what will or won't block an NJ tube appears to be extremely subjective and dependent upon the individual judgement of each medical professional. Any advice would be appreciated please.

  • Dear

    Thank you for getting in touch on our Online Community, I’m Sue one of the information nurses on the Support Line.

    We are sorry to hear your family member has unfortunately experienced several blockage problems with their nasojejunal tube (NJ) and appreciate how distressing this must be for you all.

    Because this is happening, it’s really important for your family member or yourself to firstly discuss your concerns with the GP or hospital team involved in their care, as they are best placed to be able to offer specific, individual advice and support with managing the NJ tube at home. They will also be able to review any medications and check these are prescribed in the most appropriate formula.

    It may also help to talk through what is happening with your local pharmacist as they will also be able to offer medication advice and support. You can also get in touch with one of the  Boots Macmillan information pharmacists who are specially trained to offer advice to someone living with cancer and their families. You can search here for your nearest one in your area.

    The Royal Marsden NHS foundation trust offer a patient leaflet which has lots of information regarding caring for an NJ tube, this includes if a tube becomes blocked. Importantly it states not to attempt to unblock or administer anything down the tube if you are unsure if it is in the correct position, and to always seek advice from the healthcare professional involved.

    There is also further information here from NHS community health which gives general advice.

    I hope this is helpful and please don’t hesitate in getting back in touch for further support, as needed.

    Sending best wishes

    Sue

    Cancer Information Nurse Specialist

     If you have any further questions, please don’t hesitate to get back in touch. You can speak with the Macmillan Support Line on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

     Ref: LB/SMG

    Sue Cancer Information Nurse Specialist