Cervical cancer - symptomatic?

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Hello. I'm a 30 year old female. Non smoker, not overweight, generally healthy lifestyle but do enjoy drinking socially. I've been taking the  contraceptive pill consistently since I was 19. History of cancer in my family: my maternal grandmother died of breast cancer in her 50s, maternal grandfather of colon cancer in his 70s and my own mother passed away just a few years ago aged 55 - pancreatic cancer. 

Last August I had my routine cervical screening. This was my second one in 12 months. A year ago my test came back positive for HPV so I was tested again this year.

During my test I bled a lot. It was like a period and I wore a pad for a few days afterwords. The doctor said my cervix was inflamed. She put urgent for test result to be returned ASAP and also asked me to come back for an STD test. I did the STD test and it was negative. 

Despite the Dr's 'urgent' note it was still 3 weeks later when I got the results from  the cervical check - positive for HPV again so I was referred to a colposcopy clinic. I got a letter that dated my test for the 21st of November. This seemed too far away so I tried to get in earlier - I was told they don't do cancellations and it is standard to wait 3 months. This is all done through Cervical Check programme in Ireland.

Meanwhile my GP referred me to a gynaecologist. Even though this is in a private hospital,  as I have insurance, the earliest he can see me is beginning of December. I googled the name of the gynaecologist she referred me to and he specialises in oncology. 

I feel mild cramping, like very faint period pains, most of the time. From time to time I get a sharp pain- lower right of my abdomen and twice in what felt like my vagina. These pains are so quick and infrequent that I've started to think I'm imagining it! I haven't felt any pain so great I had to take pain relief. I'm also quite tired and notice I get out of breath very quickly. However I was putting all this to the back of mind - thinking I'm possibly paranoid, or feeling things that aren't there, or just more acutely attuned to that part of my body because of anxiety. I kept reassuring myself that I don't have any irregular bleeding (apart from after the test) and I don't bleed after intercourse. BUT just this evening I went to the bathroom and my underwear was stained - a dark blood, like that at the end of my period, and it smells foul.

I'm very worried!! I don't know who to talk to. I don't want to worry my family if not needed, especially given our family's cancer history and recent death of my mother. I also feel it's very much a 'women's problem' and without sisters or a mother to turn to, I don't know who to chat with. My boyfriend is in the loop but he is out of the country right now and I don't want to bother him while he's away. I would just appreciate some guidance, advice, a listening ear.......should I push to be seen sooner? If this is cancer, how time sensitive is it? Do my symptoms speak of a certain stage? Could this all be attributed to something that isn't cancer? Anything at all you can tell or reassure me would be so helpful.  Thank you. 

  • Hi

    Welcome to the Online Community here at Macmillan. I hope you find it a helpful place to access support and ask questions. My name is Vanessa and I am one of the information nurses. Thanks for your questions.

     

    I can see you are in Ireland and its therefore important that I let you know that some of your local services and treatment protocols may differ to those provided within the UK.

     

    You have given quite a lot of information so I’m going to try and work through it point by point and give some general advice which hopefully will apply to where you are.

     

    Firstly, you talk of HPV and an inflamed cervix.

     

    HPV is a term used to describe over 100 types of viruses, some of which may cause abnormalities of the cervix. In most people the body's immune system will get rid of this virus without treatment. Sometimes it can take a while for the body to clear HPV which is possibly why your repeat smear came back positive for HPV.

    Inflammation of the cervix (also known as cervicitis) can be caused by infection, allergies and an overgrowth of some bacteria. Normal practice is to screen for STDs- which I can see came back negative for you.

    A colposcopy enables the healthcare professional to take a closer look at your cervix and this would seem a very useful procedure for you to have in view of your ongoing HPV status and inflamed cervix.

    I understand 21st November feels some time away and would suggest that you go back to your GP today and let them know that you have had some bleeding and pain. Also let your GP know that you have been feeling tired and out of breath. They may wish to examine you and check for any obvious causes of this which could be treated whilst you are waiting for your appointment.

    You are obviously very worried that all you are experiencing could be cancer. I cannot tell you if you have cervical cancer, but I can tell you that other conditions could cause some of the symptoms you describe.

    You have been referred to the right services who will be able to explore your symptoms in more detail with you and that’s important to remember.  

    Referral to someone who specializes in oncology could well be a coincidence and simply because they offer a private gynecological service in your area.

    I understand that this can be a difficult situation to discuss with friends and family but there is support available. Jo’s Trust is a charity which supports women who have concerns regarding HPV, cell changes, cervical screening and cervical cancer. They offer a helpline, ask the expert and an online forum.  

    You might also find additional support by calling the Macmillan Support Line and speaking with a cancer information nurse specialist.  Although we are unable to diagnose, we can give you time to talk things through.

    We are open 7 days a week from 8am till 8pm. Our number is 0808 808 0000.

    I hope this information is helpful but if you have any more questions please don’t hesitate to get back in touch.

    Best wishes,

    Vanessa,

    Cancer Information Nurse Specialist 

     Ref: VG/UH