post mastectomy, removal of all lymph glands and radiotherapy I was prescribed Letrazole, 1 tablet/day for 5 years. After 4 months I had to stop the medication as having severe pain in joints and muscles mainly my back. A GP visited and told me it was a spinal problem. After 4 weeks without the meds, I was put on Exemestane and after 2 weeks, I am having the same pain which I describe 9/10. Both these meds were to be taken by me 1/day for 5 years. 3 weeks ago when I saw the Oncology Consultant he reckoned that there are 3 very similar meds, Letrarole, Exemestane and I dont have the name of the third one. His advice to me was that if I started to experience the same symptoms with the Exemestane as I had with with the Letrozole I SHOULD STOP TAKING THE TABLETS and not be prescribed the third option. I have tried to speak with my breast care nurses, left a message for them but still waiting for a reply. I am very puzzled by the Oncologist's advice as my breast cancer was the most aggressive type and I think I should be on some kind of medication.
I spoke yesterday to a lady at my local Maggie's centre where I go for the Nordic Walking Group. She has had symptoms like mine and after the first two meds caused her pain, she was started on Tamoxifen - I understand that everyone's case is different. At almost 78 years of age I need to know if it is sensible for me to simply stop all cancer medication? I asked the consultant should I advise him if and when the side effects got to the unbearable stage and he said NO.
Please advise me, if you can. I have had such great support from Macmillan since I have been on my breast cancer journey.
