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Not sure if I can choose which surgery to have

Hopeful one
  • 2 replies
  • 43 subscribers
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Hi there, I'm new here and I've recently learned I have estrogen positive, HER2 negative stage 1 invasive ductal carcinoma. I've been told I'll need a lumpectomy. I must admit I constantly feel nauseous while waiting for news of the treatment plan. I know all the tests are necessary, but after an initial mammogram, ultrasound, biopsy, a further 2 ultrasounds, I will go for another appointment in 6 days to hear the decisions made in this coming Thursday's MDT meeting. I already know that my tumour is 17mm but is within a larger cyst 40mm x 30mm. My nodes didn't need further biopsy. Neither did a suspect lump in the other breast.

There's so much vital information to take in, but it becomes a bit complicated. I just want to be free of this monster having its own party inside me.

My question is this, if the team decide I should have a lumpectomy with follow up treatment, could I insist on a mastectomy? My reasoning; to have the best chance of  avoiding the cancer coming back later. And eliminating the nasty side effects of any follow up treatment. Thank you.


  • Hi Hopeful one,
    Thanks for getting in touch and welcome to the Online Community. I’m David, one of the Cancer Information Nurse Specialists. on the Macmillan Support Line.
    Making treatment decisions can be hard, especially when the information is complicated. Don’t be so hard on yourself as many people can feel overwhelmed.
    There are a few things to consider when you make decisions about treatment. Like what the possible benefits or disadvantages of treatment and if it’s the right decision for you.
    We would encourage you to ask lots of questions when you discuss your treatment options with your Consultant. They will not be able to proceed until you have given your consent.
    We have further information about talking to your healthcare team about treatment here.
    There are advantages and disadvantages of different types of surgery for breast cancer.
    It’s a good idea to have further discussion with your surgeon or breast care nurse to see what options may be available to you as you may have a choice.
    Whether you have a lumpectomy or a mastectomy, it’s important to do what is right for you.
    It’s important to let your doctor know what you would prefer going forward and your reasons for this. They will consider your feelings and make sure you have an informed choice.
    Opting for a mastectomy will not necessarily eliminate your need for further treatments and has no bearing on survival statistics.
    Treatments after surgery will depend on the risk of your cancer coming back in the future. Everyone’s breast cancer is unique to them. We have this breast cancer treatment overview that can give you a better understanding of what may happen next depending on your surgery results.
    Sometimes people find strength in talking with others who share similar experiences. Our Breast Cancer Forum may be a good place to start.
    Breast Cancer Now are also a good source of information and support.

    With best wishes

    David T – Macmillan

    Cancer Information Nurse Specialist

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us.

    REF/ EMCP

  • in reply to David T - Macmillan

    Hi Hopeful one,

    Thanks for getting in touch and welcome to the Online Community. I’m David, one of the Cancer Information Nurse Specialists. on the Macmillan Support Line.

    Making treatment decisions can be hard, especially when the information is complicated. Don’t be so hard on yourself as many people can feel overwhelmed.

    There are a few things to consider when you make decisions about treatment. Like what the possible benefits or disadvantages of treatment and if it’s the right decision for you.

    We would encourage you to ask lots of questions when you discuss your treatment options with your Consultant. They will not be able to proceed until you have given your consent.

    We have further information about talking to your healthcare team about treatment here.

    There are advantages and disadvantages of different types of surgery for breast cancer.

    It’s a good idea to have further discussion with your surgeon or breast care nurse to see what options may be available to you as you may have a choice.

    Whether you have a lumpectomy or a mastectomy, it’s important to do what is right for you.

    It’s important to let your doctor know what you would prefer going forward and your reasons for this. They will consider your feelings and make sure you have an informed choice.

    Opting for a mastectomy will not necessarily eliminate your need for further treatments and has no bearing on survival statistics.

    Treatments after surgery will depend on the risk of your cancer coming back in the future. Everyone’s breast cancer is unique to them. We have this breast cancer treatment overview that can give you a better understanding of what may happen next depending on your surgery results.

    Sometimes people find strength in talking with others who share similar experiences. Our Breast Cancer Forum may be a good place to start.

    Breast Cancer Now are also a good source of information and support.

     

    With best wishes

     

    David T – Macmillan

     

    Cancer Information Nurse Specialist 

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

     

    REF/ EMCP

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