No more treatment

Former Member
Former Member
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After 8 years of my mum battling terminal cancer, we got the news last week that there is no more treatment.  Mum has defied all prognosis' so far, so we know how lucky we have been to have had so much time with her. 

It's hard not knowing how long mum will be us now, or how the cancer will react now there is no treatment.  Does anyone have any advice or experience with this? I'm just finding it hard to get my head around.

Mum was diagnosed with kidney cancer, but by the time they operated to remove the kidney, it had ruptured and there are now tumours in 3 different lymph nodes and 1 on her main artery. 

  • Hi Tmcdee,

    Thank you for getting in touch with us at this difficult time and welcome to our online community.  My name is Adrienne and I’m one of the Cancer Information Nurses at Macmillan.

    I’m so sorry to hear that there are no more treatment options for your mum and it’s completely understandable that you would want to know how things will progress. 

    It is impossible to know how long your mum will be with you.  Prognosis depends on a number of things, including the type and grade of the cancer, where the cancer spreads to and any other underlying health conditions your mum may have.

    As your mum is no longer having any treatment, it would be helpful for her GP to refer her to the community palliative care nurses as well as the district nurses.  Together, they can assess your mum going forward and advise on how things are progressing and what to expect.    

    The palliative care nurses can also provide help with any symptoms that may arise, such as pain or nausea, as well as offering emotional support to the whole family.  They are usually attached to the local hospice and often work along side physiotherapists and occupational therapists to ensure your mum has everything she needs in her home to be as independent as possible for as long as possible. 

    I can only imagine how hard it must be, trying to get your head around it, but please know that you can call us at any time to talk things through.  Our lines are open from 8am to 8pm every day and it can help to talk about how you are feeling.

    I see that you’ve joined our friends and family forum.  I really hope you find this helpful.  It’s important to remember to look after yourself too and please do reach out to us to talk things through. 

     

    Take care and best wishes,

    Adrienne (Cancer Information Nurse Specialist)

    You can speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/ EB