Hydroxycarbamide

Hi CarolineA

Thanks for getting in touch. I see you have joined some of the online community forums and I hope you find these good sources of support and information.

My name is Eileen and I’m one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

It’s understandable that you have questions and concerns about starting Hydroxycarbamide, particularly as treatment can be ongoing.

Hydroxycarbamide is a mild form of chemotherapy and is generally a very safe treatment which is effective in reducing levels of red blood cells and platelets. It’s the most common drug used to treat Polycythaemia Vera and is usually well tolerated as it’s given in a relatively low dose for this condition with side effects generally being mild.

Whilst the drug may cause thinning of the hair it’s unlikely that you would loss all of your hair.

Any side effects you may experience can usually be managed with help from your treatment team and by using supportive medications if needed.

There may be risks when taking hydroxycarbamide over many years. There is some evidence that it may increase the risk of skin cancer and when taking the drug, you’re advised to protect your skin from the sun.

In rare cases the drug may increase the risk of leukaemia but generally, the benefits of taking the drug outweigh the risks.

It may help to talk to your Clinical Nurse Specialist or Consultant about your concerns. They will be able to talk to you in detail about the dose of the drug you’ll be given and what to expect.

I hope this is helpful but please don’t hesitate to get back in touch if you need further information or support.

Best wishes

Eileen

Our ref: CF

Thanks so much Eileen - this is really helpful. I find after every conversation at hospital, I come away realising I have more questions, that weren't on the list i went in with! Your words are very encouraging to reduce the sense of panic I'm feeling, and whatever the outcome, have made me feel more optimistic and calm. Have a lovely day x