neuroendocrine Tumours

FormerMember
FormerMember
  • 1 reply
  • 42 subscribers
  • 474 views

Hello, my mum has neuroendocrine tumours in her neck (on one side) and her liver - they have said that it’s unoperational- but I’ve read about so many different types of treatments- I wondered which treatments would be best for the neck and liver and is there still chance of recovery even though it’s in two places.

im really scared and it’s all happening so fast. I’m not ready to lose my mum 

  • Hi Samantha24,

    I’m sorry to hear you’re so worried about your mum. It sounds as though you’re all going through a difficult time just now and so I’m glad you’ve reached out to us.

    It’s natural to have many emotions when a loved one is diagnosed with cancer.  We’re here to offer support and general accurate information. Please remember you can also speak with our nurses directly on our support line too, if you think that may help.

    Like you say, there are many treatments available for patients with Neuroendocrine Cancers and your mum’s treatment team (Multi-disciplinary Team) will look at the best treatments for her. Within this team, your mum will have a named Clinical Nurse Specialist and sometimes it can help to chat with them about any concerns you both may have.

    Once a cancer has spread to another area of the body, surgery isn’t always considered the best option. Instead the doctors may look at systemic treatments such as Chemotherapy or Targeted Therapy. These treatments work by targeting the cancer cells that may be in the bloodstream too. The doctors may also discuss Radiation Based Therapies.

    It’s difficult to know with any certainty how your mum’s cancer may respond to a treatment until she is given that treatment and is then reviewed by her medical team, but it is possible, these treatments can slow the growth of the cancer cells and reduce the size of the tumours.

    I can see you’ve joined our online forum for NET cancers, sometimes the support and friendship of others going through similar experiences can be helpful. It may also help to look at our family and friend’s forum. Coping with uncertainty is extremely difficult, so please don’t hesitate to get back in touch with us. We want to support both you and your mum as best we can.

    Best wishes and take care,

    Gail-Macmillan (Cancer Information Nurse Specialist)