My wife has uterine carcinosarcoma, terminal of course. She has had 3 sessions of chemo and we have a CT scan scheduled for 13/10. At this stage, chemo may be abandoned and her death managed. It is only palliative at this stage but is causing much distress.
what happens now? She would prefer to be at home, not a hospice. Can we get a hospital bed installed? What is the health visitor regime? I’m lost without information.
Hello N99 and thank you for contacting the Online Community.
I’m sorry to hear about your wife’s diagnosis, it’s understandable this is causing you both distress.
Palliative nurses (like Macmillan nurses), specialise in pain and symptom management as well as offering emotional support and helping to co-ordinate care. They work on a referral basis and a health care professional like a G.P. can arrange this and other kinds of support, including referring to District Nurses who can provide certain equipment like hospital beds. Your wife’s G.P. can also talk through with you who would be able to visit and when.
You might find the following publications helpful.
Looking after someone with cancer
Do you have much support around you just now N99, friends, family, people who you can talk to about what’s happening and how you’re feeling? I appreciate you’re contacting us about practical matters, but we’re here for your emotional support as well. Please stay in touch if it would help to talk or if you have any further questions. We have nurses here on our support line as well as Money Advisers.
Alex, Information and Support Adviser
Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.
