Fear of cancer, fear of living

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Hi, I don’t know if you can help or give me some suggestions.

I was diagnosed with stage 3 rectal cancer in 2022 following an accident in 2021 - the scans showed 6 broken vertebrae, a broken pelvis and a shadow in my sigmoid colon.

I had surgery followed by chemo, it was a difficult time but I recovered well and have had several scans and colonoscopies since that are all clear.

But now, nearly 2.5 years on from the end of treatment I am finding it really hard to live life. I am sure the cancer will come back; I’m in the 63:37 stats, that I won’t survive 5 years, that it’s my fault as I’m overweight and need to exercise more and yet I keep failing in my attempts to make changes. I’ve read inspiring stories and seen people do amazing things following treatment and still I fail to change.

I’m scared and I don’t know what to do, I’m tired of being so useless and not changing, I want to get on and embrace life for now but seem to fail each time I try. I know I’m lucky and I wish I could appreciate that and be grateful. Any guidance appreciated.

  • Hello Georgie and thank you for contacting the Online Community.

    I’m sorry to hear you’re finding it hard to live with the worry of your cancer coming back. Most people who have been through cancer treatment live with some worry and uncertainty. This does not mean they are not coping with life after treatment, but it sounds like it’s really affecting your life just now, so it makes sense you want to change things.

    Have you had the opportunity to discuss these concerns with your health care team Georgie? We have Cancer Specialist Nurses here on our support line if you’d like to have a clinical discussion about this.

    You might find our publication Worrying about cancer coming back helpful. It has information about talking and getting support, follow-up appointments and tests, following advice, focusing on your health, and managing stress. There are also suggestions to help you manage your worries, uncertainties, and fears, and how to look ahead to the future.

    The HOPE (Help Overcoming Problems Effectively) programme is a self-management course delivered by Hope For the Community CIC, and is based on an online platform. The content of the HOPE programme has been co-designed alongside people living with cancer and is based on positive psychology mindfulness and cognitive behavioural therapy. It is built on 25 years of research evidence at Coventry university. It is designed to support you in developing techniques and strategies to manage several aspects of living with cancer. You can find out more and sign up here.

    If you’d like to discuss any of this further or have other questions Georgie, please feel free to call our support line.

    Alex, Information and Support Adviser

    Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.