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Struggling!!

ButterflyWine
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I've been unwell for several years and am becoming increasingly unwell as the more recent weeks and months pass. I am currently waiting for the results of a blood cytometry test and it's taking weeks. I was urgently referred to Haematology on the 11th of March and I've still got no answers. My NHS app record shows that results will be uploaded on April 24th. What does this mean? 

I'm feeling so unwell and I'm also struggling mentally and emotionally. I also have bipolar and ADHD but I can't get any talking therapy (it's a long and irritating story). I honestly don't know how to cope right now as I can barely focus. I'm off work for 2 more days - due back this Wednesday but have been off for approximately 1 month so far already - but I honestly don't know if I can handle it. At the same time I'm scared of losing my job and/or having very little money coming in. I feel absolutely trapped.

What should I do while waiting on test results to confirm a cancer diagnosis???

  • Hello ButterflyWine and thank you for contacting the online community.

     I’m sorry to hear you’re unwell, it’s understandable you’re struggling emotionally just now, especially with your pre-existing conditions. Do you have much support around you?

     I can’t really add to what the NHS have said about your results being uploaded on April 24th, but we do have a team of cancer specialist nurses here on our support line if you have any clinical questions or questions about what should be happening and when. You’d be welcome to call in on 0808 808 00 00 (7 days a week, 8am – 8pm), web chat or email if you’d prefer.

     Our publication How are You Feeling? The Emotional Effects of Cancer is aimed at people with a diagnosis, but it contains useful information about managing anxiety and depression and dealing with uncertainty that you might find helpful.

     We speak to lots of people living with cancer who are worried about finances and employment, and in the event you are diagnosed, our Money and Work team can speak to you about financial support and your rights at work as a person living with cancer.

     I appreciate this is a worrying time for you ButterflyWine. We’re here for your emotional support you so please stay in touch if it helps to talk or if you have any further questions.

     Take care.

    Alex, Information and Support Adviser

    Remember you can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or by email.

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