Can anyone advise me about home care and mental capacity status please?
I'll try and explain briefly our situation - So my dad was diagnosed with terminal cancer in January this year which had started in the lungs, went to the brain (tumor removed) but has now spread to the bones, kidneys and now has multiple brain mets. He has lost sight in his left eye, slurring words, confused, poor mobility, hallucinating etc from the mets. He is on morphine which causes drowsiness and is sleeping alot and therefor missing his meds so last week he was in a terrible state, had the paramedics out and then had a 1 weeks stay in a hospice which turned him around massively. I couldn't believe the difference.
He came home from the hospice yesterday. Refused the home care package. Hospice hasn't informed me about this and therefor i found dad in bed again this morning in an absolute state as he had missed his meds from lastnight and this morning. He is not in the right frame of mind to be making these decisions for himself and I cannot believe the hospice just let him on his way with no carers in place.
I've phoned around the palliative care team who now say they need a referral for care because he's declined it from the hospice and to phone the council. I did which falls under social services who then told me he needs to go into hospital under safeguarding issues which this is absolutely not where he needs to be right now. My dad hates the hospital due to them always sticking him on the dementia ward/end of life which is not where he wants to be spending his remaining time, he wants to be at home with his own comforts. They are his wishes.
Apparently someone is coming out Monday, yes Monday, 2 days away, to do a mental capacity test on him. I have no idea what he'll be like comes Monday. Me and my nan are having to sort his meds now and everything else. Dad lives alone. I feel like we are back to square one. Everything is an absolute battle and have had a terrible experience throughout. I am constantly being passed from pillow to post ringing different numbers. We feel completely stuck. Dad 100% needs carers to administrator his meds. Today he's not eaten or drank anything and will decline massively. But we have managed to get him out of bed once his morphine kicked in.
Can macmillan nurses go out to him to sort this kind of thing? Or will we be looking at private carers because I can't see a way forward anymore.
TIA