I'm only in my early 40s but over the last 4 years I have had several colonoscopies and in total have had 27 polyps removed. There were all sorts of delays getting information during the pandemic however over the summer I was formally diagnosed with Sessile Serrated Polyposis Syndrome (SSPS) and am back on the waiting list to have a further exploratory colonoscopy and awaiting the results of genetic testing.
I hadn't fully shared the seriousness of this situation with my wife however we have since separated for other reasons and therefore I don't really have anyone to talk to about my fears and emotions. This is being compounded as I am going through a messy divorce, fighting to have shared custody of my two young children and am currently unemployed and living off savings.
My wife is being particularly vindictive and I fear that any disclosure to her about my condition or financial predicament will be used against me somehow in the child proceedings. I'm in a right mess and dont know where to turn.
I have spoken to my GP and he offered me anti-depressants which I’m not keen on taking but also suggested reaching out to a charity like yourselves for information and support. He said my condition is rare and untreatable and leads to colon cancer. I have to attend regular bowel screening and have pre-cancerous polyps removed every year so he suggested I might be considered to now be disabled and could claim benefits through universal credit.
I’ve never had to do anything like this before and really don’t know what I’m doing or where to start. I tried to enter my details for universal credit last night and have now been given an appointment at the jobcentre so I think I have done something wrong along the way.
Has anyone got any advice on how I make dwp aware of my situation please?
Thanks
