Big decision pending - any thoughts?

1 minute read time.

Hi,

In late October 09 I was diagnosed with cancer, with a large tumour in my rectum.  The first stage was to go into hospital for a colostomy which, whilst unpleasant, has had a beneficial effect on my health as in the run up to the diagnosis going to the loo was either impossible or extremely uncomfortabe.  The next stage was a course of 5 weeks radio therapy and chemotherapy (by tablets) to shrink the tumour.   The resulting scans, which were done last week, proved the tumour to have responded less well than hoped and to show that it is in very close proximity to my prostate and bladder; although there seems to be some uncertainty whether what is showing up is actual tumour or scar tissue from the radio/chemotherapy. There is also some swelling of my urethra.  This doesn't mean the cancer has spread to those organs (though it might have) but it does mean that in the current scenario both prostate and bladder would need removing to be sure of either eliminating any spead or prohibiting it.  As the bladder removal can't be done at my current hospital I am being referred to another.  I would appear to have 4 options:

  1. Do nothing and let the body carry out its own healing enhanced by a healthy diet and lifestyle.
  2. Wait a couple of months and have another scan to see if the tumour shrinks further which means a far less extensive operation could be carried out.
  3. Have major chemotherapy to inhibit the tumour.
  4. Have the major operation as soon as possible to remove the tumour, rectum, bladder and prostate.  My stoma would become permanent and I would need another device to take away my urine.

All four options are fraught with risk but some more so than others. 

Has anyone been faced with a similar dilemma?  Has anyone had this sort of surgery?  Has anyone any advice or comments.

 

Thanks for any help.

Anonymous
  • FormerMember
    FormerMember

    Sorry Zomman, i cant help you in your decision, what a dilemma this must be for you making up your mind which road to follow. It doesn't seem fair that your doctors have left you to decide. Why have they not gone for the treatment they feel would be best in the long run and put your mind at rest that they know what there doing, after all they are the experts.

    Hope you find the answer soon.

    With Love Lucylee. xxxx

  • FormerMember
    FormerMember

    Hi Zorman, I had 2 big ops on bowel and rectum and thought that would be it but no Ive been fighting bladder cancer for 2 years now . Anyway I now have a date for surgery on 8th march to remove bladder , prostrate and all surrounding lymph nodes .Im certainly not looking forward to it as that will mean 2 bags hanging from my belly. and these are not reversable. But then whats the alternative . If I were you id go ahead with removal mate and like me just hope for the best.

    Hope this helps in some way.

    cheers

    Jim

  • FormerMember
    FormerMember

    My tumour was 4cms up from the anus and I had chemo and radio to shrink it. It responded well but shrank from the top down which meant that I had to lose about two feet of bowel and my rectum, anus a perenium. The operation went well but I still have severs problems with sitting - I am told it may take six months to a year to heal properly. I have a permanent stoma which is not a problem to me (other than when my bowel decides to misbehave) and I am going on irrigation which gives some control over when your bowel evacuates.

    You need to enter into detailed discussion with your team. I know they can't and won't make predictions but you need to get the best advice available to make your decision. Cancer will kill you if left untreated. There is no easy way of saying it. You need to weigh up quality of life against the onslaught of treatment. Is the cure worse than the disease? My mother had a mastectomy and was dying from secondary cancers when the doctors tried a new treatment. It prolonged her life but she had three months of quality life followed by nine months of purgatory. I know my father never forgave himself because she could have just slipped away. I a truly sorry that you are having to face the harsh choices that you are and I wish you the very best of luck. Ask the questions, do your research and at least make a decision on the best information available. I am finding my bum situation intolerable but it is, as they say early days. Best of luck

    Drew