Unknown Neuroendocrine Primary with Mets to Liver -- Feeling Helpless
Less than one minute read time.
FormerMember
Hi All,
My mom was diagnosed with Neuroendocrine Cancer with mets to her liver (Stage IV) in August 2007. She's unoperable as there are too many mets in her liver. We are in New York, US. She was seen by Dr. Warner and was offer SIR Radiation Treatment at the time she was first seen by him. My father, her primary caretaker opted out from the Conventional Treatment and decided to use "Watch and See" approach with regular monitoring and tests/scans. She was also doing a Gerson Protocol and Budwig Protocol (both Alternative Nutruition Diets) and up until recently (about a month ago) has been feeling ok, her liver function was normal and she was generally feeling ok. About a few weeks ago my mom's condition took a turn for the worse. Her Chromogranin A marker got very high and her general condition got worsen. My father seems to be in denial and is still reluctant to do SIR or the Sandostatin injections. I don't know what to do and feel pretty helpless! Has anyone had a succes with either SIR or Sandostatin? I'd appreciate your feedback.
Yulia
FormerMember
Hi, Yulia,I have had carcinoid cancer or neuroendocrine tumors for three years now, and i have been having the sandostatin lar injections for the last year. I started on 20mgs every four weeks and now i have 30mgs every three weeks. It helps with the symtoms and i have just had my scan results and there has been no growth and the tumors are stable. I started with tumors in my ovaries and had them removed, but the primary was in my small bowel, so i have had that removed as well, but it spread to the liver. The tumors are very small in the liver,so i have regular scans, blood tests and urine tests to keep an eye on them, it is also slow growing. If i can help in any way i would be happy to, i live in the uk and because this cancer is rare there are not many of us
