Tuesday 15th.May - a mixed bag

2 minute read time.

Feeling tired and weary today, can't work out if it's a bug or stress!!

Wrote a letter to the parents in the kids club that i run explaining a little of my situation as i've not always been able to get there and my deputy has had to fill in quite a bit in the last month. I've also been late in getting out invoices and answering parents queries. It was a really hard letter to write as it seems to make everything official which seems an odd thing to say but it's how i feel. Some parents read the letter when i was in the room which was too much and i had to take refuge in the kitchen!!

Mum having her pre-op meeting on Thursday. The nurse is coming round to (amongst other things) draw on mum the 4 keyhole points where they're hopefully going to go in. I'm pleased that they're doing a home visit as her mobility has deteriorated but i hope that there's no more mistakes or mixups as mum is really wobbling now and it won't take much to tip her over the edge.

My sister did her first solo run to work today. She's been off for a month with the burns and hasn't been able to drive for over a year. She has to get a taxi to the train station, 2 trains then a taxi to the university where she'e a lecturer. A journey of nearly an hour and a half. She doesn't know when a seizure may come on and travels alone, I don't know how she does it. The university have provided her with an alarm system that activates if she tilts beyond a certain degree by ringing a set of numbers to alert first aiders in the building. She also starts any meetings with people who don't know her by explaining what they should do if she has a seizure. She's even stood infront of 500 people ready to give a talk and told her colleages that if she has a seizure they're best to step over her and continue, but just talk louder!!!

My friend is taking me for a belated birthday treat tomorrow of afternoon tea (it's at 11.30am as we have to get to work by 3, so it's technically morning tea!) . It's really lovely of her but I would rather spend the morning having a long soak in the bath and going back to bed for a few hours! Call myself a friend, I should be shot at dawn! Hehe.

 

 

Anonymous
  • FormerMember
    FormerMember

    I do hope you enjoyed your birthday treat.You deserve a long holiday.HUGS xxx

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    FormerMember

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