having a bad day

Less than one minute read time.
Hi, I'm new, hope you don't mind me having a moan. doctors have highered my thyroid tables and I'm having side affects so I mentioned this to him, and to solve the problem hopefully. He suggested 150 then 175 mrg alternate days. I thought this is new I'll try it anything to help with the affects. been driving me mad. so I'll see how it goes, anyone had a similar thing ?
Anonymous
  • FormerMember
    FormerMember

    Just wanted to say moan away!  You're in the best place to do it and every right to feel fed up. Sorry I can't help with your question but someone here may be along soon who can help.

    Take care

    pheonix  xxx

  • FormerMember
    FormerMember

    Hello.  It is always tricky.  Go with how you feel, is what I have always found.  My doc put mine up to 200, and I was having palpitations and feeling grisly.  I was sure it was too high, otherwise I would have gone with it, because it has always been a battle to get the dosage high enough.  It takes a long time to get used to a higher dose,  so don't worry if you feel a bit strange for a week or two.  This alternation between 150 and 175 is quite normal because they can't split a 25mcgm tablet.  It's a very small dose, and most of the tablet is filler.  

    My balance went a bit wonky after I finished chemo and I am certain that at 150, I am on the right level, even if the blood tests say I'm over.  You have to remember that  the "normal' range includes the people who aren't diagnosed.  You should be having regular monitoring, and ask for T3 and T4 testing as well as TSH.  Have a look on http://www.thyroiduk.org for further information.  

    Doctors often fear heart problems if you are overdosed, but you can have heart problems if you are underdosed as well.  I have never had heart trouble that could be diagnosed.  It was always a chest muscle or stress.  

    I hope this helps

    Rwth

  • FormerMember
    FormerMember

    Hello.  Not familiar with your cancer or treatment, but I see good 'ol Ruth is and has given you good advice.  She is quite right about knowing your body and communicating with your doc.  REMEMBER they are "practicing" medicine and there is never a one size fits all in medicine.  The dosing they give on almost anything is either predetermined by its packaging or recommended guidelines that they refer too which is based on a majority response, but doesn't address situations or people outside that majority response except in notes and exceptions and that's a big maybe.  Anytime you give your body drugs it is not "normal", but then your body isn't "normal" with an illness.  So pay attention, listen to it and adjust as needed yourself as well as meds.  It can take a while for your body to adjust, which often it will.  With each new drug you might ask the doctor, is their an adjustment period for this drug?  What warning signs should I call you about immediately, etc.

    And Phoenix is right, this IS the right place to whine and share your wins as well.  We understand the joys and the sorrows on a very personal level.  When you do it here with people who want to hear it all, give a hoot and support all your efforts, then you can spare your friends and family who may not understand what you are going through.  Until you've been here you can empathize but true understanding comes from those who have been through it or are in the middle of it.  Good Luck - Lori

  • FormerMember
    FormerMember

    thanks for you reply, i've been having a bit of a hard time i wasn't sure about doing a blog. felt a bit silly  but im glad i did, its helped cheer me up thank you pheonix

  • FormerMember
    FormerMember

    thank you for your advice, i never know whether to go with my feelings and just left it , and thought it'll sort it self out but i realise now like you say.go with how you feel, it took alot to ring my consultant but he was great .i've been doing the alternate dose now 4 days , at first there was know change and like you do you get a bit dismayed, but i'm finally beginning to see a change its slow bút its there. its nice i'm not on my own. i hope things is going well for you ?

                                                                    xjanx