Writing as a way of coping

2 minute read time.

The purpose of my blog is to share how I’ve used writing to help me cope with my cancer journey, in the hope that this may be of interest or help for someone else dealing with their own cancer journey, or perhaps supporting someone in this position. So, I thought I’d kick off my blog with a few thoughts around why I decided to write and how I feel it’s been helping me - at least some of the time!

I was diagnosed, at the age of 45, with stage 3 bowel cancer in July 2024, had successful surgery in September (which also included a full hysterectomy), and am now part way through chemotherapy. I can’t believe that I’m now 6 months along a journey which I know has many possible pathways still stretching ahead of me. My diagnosis completely turned my life upside down, split it into a ‘before’ and an ‘after’.

Once I emerged from the shock of the diagnosis, I knew that I needed to have some way of processing what I was going through. So, at first I really just wrote down all the crazy mixed up thoughts going around in my head and tried to deal with the utter fear that was constantly gnawing away at me. And this has been something I’ve carried on using writing for - particularly during some of my darkest days. But I as time went on, and the interminable periods of waiting stretched on, writing also became a positive way for me to find a focus and a purpose for myself in amongst it all.

Writing - just for myself initially and now taking the plunge in sharing with other cancer passengers on here - has been something which has meant lots of different things to me at different times. It’s helped me hold onto who I am as well as accept and cherish a new version of myself. It’s helped me in the daytime and the middle of the night. It’s helped me to unleash all the crappiness, but also to grasp tightly onto moments of joy.

Writing has been a concrete way that I’ve found to cope with all the ups and downs. It’s definitely not been a magic wand - it’s not solved all my problems or sorted everything out in my head! - but it has helped me to process my emotions and how this cancer journey is changing me. The anger, the frustration, the anxiety, the fear, they’re all still there along with the moments of hope and the love and support I am lucky enough to have around me. But I think my writing has me to not get lost in it all and to feel that I still have some control in some small way.

I’d love to connect with anyone else who has made writing a part of their coping strategies for their own cancer journey! And I’ll try share some more of my thoughts about how writing has and is helping me cope in the blog entries which follow. Maybe this might create a spark for someone else to try writing about their own unique experiences too!

Anonymous
  • In the days before cancer, I had a stressful job and would often wake up in the night worrying about something. I always found that if I got up, and wrote out what I was thinking, I would get back to sleep. More recently my cancer journey included a lengthy period of high dose steroids, which stopped me from sleeping. Again, writing things down in the middle of the night (even if it was mainly work tasks) gave me some respite.  Running has also always provided solace, but that’s hard now after everything I have been through. Thanks for blogging. 

  • Hi Coddfish! Yes, I think the writing in the middle of those sleepless nights has absolutely saved me at times!! I know it’s not necessarily helpful for everyone, but I’ve found it to be a really powerful tool on my own journey - lovely to hear how it’s been helping you too! Thanks for replying!

  • Hi  

    I’ll be really interested to follow your blog posts, as I love writing too. When I was first diagnosed, I started writing more in the form of diary writing as things went on. Short posts, noting positive quotations, that sort of thing.but I regret I didn’t continue with it.

    Last year I decided to do something more major, and started by constructing a timeline for the last 6 years, using my scrappy notes and after sorting all my appointment letters into some semblance of order. This turned into something much more major and organised!

    I wrote everything longhand so I could do it all on pages of A4 and easily access and add/change things, and I didn’t have a laptop. I found lots of things coming into my head, and when they did I wrote them down. I need to go back to it as I am nowhere near finished! 

    In addition to writing about my actual cancer and treatment I also write on many other topics-the language of cancer, how others see us, toxic positivity, empathy-a whole range of different areas to explore. I add poems I’ve found meaningful.

    Writing for me really did sort things out in my head and I’ve found it so useful. I’m currently writing for my younger daughter who gave me a book called something like “Mum, I want you to tell me your story”. This has grown arms and legs as it’s basically a condensed story of my life and it’s very easy to go off at a tangent. So, it’s a work in progress which will be very different from my writing about cancer and treatment. 

    I don’t have a blog here on the site, and will concentrate on my other projects but I’ll follow yours with interest! 

  • Hi SarahH21,

    Thanks for your lovely response and so interesting to hear about your own writing! I love the sound of your timeline project - it sounds fascinating and I can see how big a project that could end up being! I’m also interested in map-making as a form of writing and have been playing about with that a bit too!

    Like you, I’ve found my writing over the last few months has grown to encompass lots of different things - sparked by my own experiences and the new perspectives these have given me. I’m fascinated by the idea of our stories and how they are unique to us but also hold so many potential connections and resonances with other people’s stories. One of my frustrations with my cancer experiences in the system has been how unimportant a patient’s experience - their stories - can seem to be!

  • Thanks Lola. I’m trying to see my cancer writing and my stories for my daughter as two different projects completely and I must get on with some more work on both! 

    What has been similar with both is the amount of memories triggered as I write. I wish I had written more at the time of my treatment, surgery and recovery, but I found it difficult when treatment was progressing and more so after surgery as it was so difficult. I’m glad to have a file now of all my appointments and letters which spark memories of particular feelings at the time. That enables me to sit quietly and focus on each different stage.

    I too have wished on many occasions that the medical professionals would listen to us and our experiences -one of my surgeons did suggest that she would arrange contact for me with other ladies coming up to the particular surgery I had as it’s not that common, but I never heard anything back. I chose then to set up a private online support group which has proved very successful and where we share experiences and do our best to support others coming up to surgery. That’s enabled me to connect with the most amazing women from different countries and has been such a help to me personally, although seeing how much support others have had from their medics overseas has made me wish we had the same in the UK!

    Writing has been a wonderful thing for me personally-I get so caught up in it, even though no-one might ever read it. It’s for me to say exactly what I want, without fear of judgement, which I like. I think I am a very different person to the one I was 6 years ago, and it’s been interesting to see how that has developed over the years.