Hi I’ve put this in the welcome page but though I’d put it copied in here and my progress.
I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began last year during covid.jan 2022. I woke up ( having only a mild covid sniffles) in the night for my mid night pee; then went to bed waking up 15 minutes later numb all down my left side and then began to /seizure fit.
I was lucid/aware all through it. A and E visit was to be honest useless. Being diagnosed with influenza. So a second happened. I chose not to go to hospital from the experience as I did recover after a couple of hours.
Then in my new job I had my 3rd seizure which meant a return to AandE. They had a CT after much complaining where they found what they called an arachnid cyst (easy to remove they said but I’d have to wait until November 2022 for more information.
I decided to go private which took a few weeks at spire to see a consultant. He said I’m afraid that’s a G2 tumour. I referred me straight away to Walton, in the mean time having 30 other focal seizures in my left arm and face ( I’ll explain more if anyone’s interested).
