How I was diagnosed with bladder cancer.

1 minute read time.

It all began with my younger brother last December (2025). He had been feeling fatigued and having pain in his hands and feet for some time so decided to go to his doctor and request a blood test to see if he had long-Covid or something. On his way to London to pick his wife up from Heathrow he got a phone call from his surgery with the results - get yourself to a hospital asap. Thinking this a bit unnecessary, he continued to Heathrow, picked up his wife and received another call, this time from his actual doctor - are you at a hospital yet? No. Call an ambulance then. Deciding something serious was going on, he called in at a local hospital in London and they ran some tests. Stage 5 kidney failure. eGFR of 5. Cause? Multiple Myeloma. Cancer of the blood basically. Didn’t leave hospital for 9 weeks, what with catheter infections, hospital superbugs, collapsed immune system and all. He’s in remission as I speak, but it has been a very steep uphill journey for him. He’s done fantastically well. One day at a time, resolved, face to the front attitude. 

My wife said get tested for it. Could be familial. So in March 2026 I got tested for Myeloma. No Myeloma, but non-visual blood in two separate urine tests. Referred to local hospital for a cystoscopy to investigate. Willy Wonka’s Nemesis was patiently waiting in the wings ready to take centre stage. 

Madiso
  • Wow - I just had to take a deep breath there. Your younger brother doing a blood test and then getting a 'phone call from his GP telling him to get to a hospital. 

    The same thig happened to me at the start of my journey, although he wins at eGFR "Top Trumps" as my eGFR was only 8 and I only spent 10 days in hospital. (click on y name or avatar for full journey details).It was 4.30 on Christmas Eve when I got my 'phone call and the only thing that crossed my mind was "You can't be serious".

    Best wishes - Brian.

  • Hi Brian, 

    You just never know who might read your blog, and there you are with a similar story. I do hope matters are more under control for you now! But what a scare. So out of the blue and life-changing for both you and my brother, and I was amazed how he responded so stoically. His eGFR is still only 15, 6 months on. His kidneys must have been affected for some time beforehand, so now other stuff like stem cell transplants etc have been compromised. It’s a lottery isn’t?

    Very best wishes for you, your family and your future,

    Doug. 

  • Mine was an immunotherapy related adverse event which caused an acute kidney injury / nephritis. Routine blood test before chemo. Phone call to take myself immediately to A&E with bag and an expectation to be admitted. I was. Several days of high dose steroids by infusion first as an inpatient then an outpatient. 9 months of prednisolone first as very high dose then tapering. Kidneys thankfully survived and recovered back to normal range. 

  • eGFR of FIVE?!!  I know a bit about eGFR, because I have experienced declining eGFR, but only to 30.  "Normal" is over 60 if anyone needs info/perspective!

    I love the way you tell the story of your brother happily going about life, unbeknown of the test result, and the urgency of the doctor.  Grinning

    Please keep blogging.

  • Thanks Mmum. Yes, the doctors were amazed that my brother was still getting around. Thank goodness your eGFR bottomed out at 30, that’s low enough for anyone.

    Thanks for the encouragement to continue blogging. I enjoy writing and all I want to do is not only express myself as regards my own journey, but try and put a different perspective on things, with a bit of humour, describe treatments accurately, all with the hope that not only will they bring enjoyment, but also that something written might just be the help or info that someone was looking for. 

    Best wishes,

    Doug.