Quality of life is rapidly going.

Less than one minute read time.

FormerMember

12 Feb 2011

Tom always said when he was first diagnosed with OC 19 mths ago that he wanted quality and not quantity of life, and up until today never showed any negative emotions.He looked so sad this morning and said he felt like crying with the way he felt and he thought that he was pulling me down as well with all I had to do for him,but like I told him he would do the same for me.He now looks so ill and spends large parts of the day asleep it breaks my heart to watch him suffer,his quality of life is just seeping away,life is so cruel sometimes and I just feel so helpless I just wish I could take some of his pain away.

FormerMember over 14 years ago

Marianne

Am so sad to read this, please try and stay strong (very hard i know, need to take a bit of my own advice sometimes). Is it tomorrow that Tom is at hosp for kidney scan? Please do ask your oncologist about having the stent either fitted again or lasered to enable Tom to carry on eating.

This disease is so cruel and I am so fed up of it...constantly ask why it is our husbands who are suffering.

Has Tom said no to the other trials that are out there? I know you said you didn't want to do the Gefintinab one, but there is one called Cougar-02 which we're looking into at the mo.

Sending much love xxxxx
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FormerMember over 14 years ago

Hi Vix

Tom had a kidney x ray a few weeks ago but he is supposed to be having an ulta sound tomorrow but he says he doesn't feel like going as he has no energy and that the lump has gone now and what else can they do for him.He doesn't want to do any trials as nothing is going to cure him and sometimes the side effects from these trials can make you worse,i have left the decision up to him as after all he is the one going through it and as much as I want him for as long as possible I have to respect his decision.Hope things are not too bad with you.xx
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