Welcome to What the UTUC

Today I joined the Online Community at MacMillan Cancer Support.

I have just recently been diagnosed with Upper Tract Urothelial Carcinoma - that rare 1% of upper urinary tract cancers.  Being in a rare and small group means a number of things:

• There are fewer posts and entries within the online community to view or share
• There may be less research and information available for this rarer type of cancer
• With smaller numbers of patients and data, research is more difficult and not as conclusive as for other cancers

Anyway, I have decided to start a blog, this blog!  I am not a blogger/vlogger/influencer, but I thought it may be cathartic to write some musings about my journey and share my experiences and frustrations.

Having set up the blog, it looked barren, with No Posts being very prominent, so I thought I will have to create a Welcome Post to shout out I AM HERE!

So hopefully I will share some information that you may want to digest, agree with, disagree with or just shout What the UTUC!!  You may also have UTUC, or be a carer or family member/friend of a patient - it would be nice to know if someone else actually reads any entries on this blog, or shares an experience.

So if you are reading this, a big welcome to you.....and a big hug.