Looking for the light

1 minute read time.

I'm now one month in and, if the general consensus is to be believed, the fatigue and nausea should soon start to lift. I'm searching for the light at the end of the tunnel because after a month of feeling ill everyday I am beginning to tire of this. 

I saw the docs last week - a very nice registrar who said he'd not seen anyone on Rucaparib hammered with fatigue quite so hard. If the onset had not coincided so exactly with starting Rucaparib, he said, they'd need to investigate whether there's another cause such as thyroid. We agreed a dose reduction. I started that on Tuesday night - five days ago now - but so far it's not provided much relief. I have to think back to the first couple of weeks when I needed to sleep twice a day. I'm down to one now but I'm still able to choose one thing to do a day. Anymore and it rebounds. 

One lesson from hospital. The routine needs to be bloods, appointment, pick up the next month's supply. Turns out the pharmacy cannot release the drugs until they've checked the blood count for anaemia. The hospital visit on Tuesday lasted three hours. 

Sorry. I'm whinging and it's not attractive. I feel a bit sorry for myself today. 

Anonymous
  • Oh dear, hospital pharmacy departments can get to rule your life. Really hope things improve and you start to feel whole loads less ill.

    Daughter was once discharged (after a short blip of pneumonia) by 11am, we waited for pharmacy to get one take home med sorted, the staff cleaned her room, stripped her bed, and we waited....and waited, and eventually that med was issued when I went back to pharmacy and repeatedly asked why it was taking.so long, we got the med at 6pm. Home to her place in the dark - again! Neither of us had had any lunch and barely any drinks.

    Sending you healing hugs xxx

  • FormerMember
    FormerMember

    Thanks Moomy.

    Your wait sounds horrendous. If your daughter had been elderly and living alone that would have caused another night in hospital....

  • My worry was that the bed could have been used! Transplant suites are limited and the demand often exceeds supply, even for isolation after an infection post-transplant!

    Hope you improve in time for this next weekend and can spend a good Christmas with your family..,,,

    Hugs xxx

  • FormerMember
    FormerMember

    Hi

    Just checking in. I hope it's an improving picture and you aren't feeling quite so 'shabby'.

    The hospital waits must be extremely frustrating.

    Wishing you all the best.

    Polly

  • FormerMember
    FormerMember

    Hi Kircal Polly

    Thanks! I am beginning to feel a bit better - see next blog post. It's a huge relief. 

    How are you? 

    xxx