What a weekend!

4 minute read time.

We spent Saturday traveling  to our daughters and her partner and helping them sort things out and un packing boxes. We got fish and chips and sat on deck chairs for the evening in their living room, but it was so lovely being with them. I just had this niggling doubt about that last MRI scan and if it would throw anything up, I hadn't said anything to my daughters, but there was the slightest doubt about my liver. Not a great nights sleep. 

Sunday morning was spent in B&Q and getting essentials for their new home, then we went to the local shopping centre to get some more bits, but I couldn't help feeling like I was on the outside looking in again. Sometimes for a few seconds I forget, then it hits me that it's real, it was so busy at the shops, everyone was Christmas shopping, I wanted to enjoy it but it made me feel sad. My husband and daughters partner went back to the house and left me and daughter to look at baby things and get something for dinner. We got a call from them a couple of hours later to say they were locked out and did we have a key? No we didn't have a key, so the locksmith was called out on a Sunday, oh dear. We got back to the house, it was cold and dark by now, the dogs were inside wondering what was going on, after an hour of sitting in the car a very dodgy locksmith turned up, no ID, not even a torch, just a crowbar thingy. He said he would have to drill the lock and put a new one in, and told us the cost but my husband knew how much the new barrels were, he was definitely trying to rip us off, after a few questions I think he knew we were on to him and he managed suddenly to get the door open! So we were in, so I went to let the dogs out, but the side gate had been left open and my little dog went missing, in the dark, somewhere where he was unfamiliar. I was shaking as I was running up and down the road shouting out to him, at that point I just wanted to give up and cry, my legs were shaking, I honestly thought things could not get any worse. My daughter found him stuck in a neighbours garden, he couldn't find his way back, what a huge relief! 

I felt absolutely shattered after all that, I just wanted to get into bed all nice and warm and sleep for a week, but it was a deck chair evening again, but I was filled with a sense of relief that my little dog was back and we'd got back into the house.

On Monday me and my daughter had to go back to the shops to get some food and an ironing board, while there I saw a missed call on my phone, 'unknown number' well that was it, my hands were shaking, my heart thumping...I just knew it was the scan results (although I was told I'd get them Friday) I walked around in a dream, trying not to let my daughter see how scared I was. So many many times I've felt this in the last two and a half weeks. I need to stop thinking the worst. An hour later while I was queuing the phone rang again, 'unknown number' I had no option but to answer, it was indeed the breast care nurse, she asked if I could talk and my date of birth, and then she told me the results were back, and that they were clear! Well I couldn't believe it, I started shaking all over again, it took a while for it to sink in that all the scan results were clear, then she said I would be starting chemotherapy on Friday, with an appointment at the hospital on Wednesday, I just want to get on with it now. Of course it meant that we would be going home in the morning, but to get the treatment started is a good thing. I felt relieved. I cried when I told my daughter about the scan results, and she cried too. 

We had a quiet evening after clearing up all the decorating mess, my brother managed to upset me when he phoned me, he'd been drinking and can speak before he thinks. After calming down we went to bed fairly early.

Tuesday morning and I woke up at 3.30am, no chance of getting back to sleep, it seems that if I get good news I just start to worry about what could go wrong at the next stage, so I don't enjoy the good news for long. I must stop doing this to myself.

Got up and packed the car up, and said a hard goodbye to my daughter with a lump in my throat trying not to cry, a long trip home and spent most of it in a haze worrying, how do I stop this worrying. 

I'm sat here this evening wishing it was Friday and the chemo had started. That's it, this rollercoaster continues, hoping things will settle down after Friday. 

Stop this ride...I want to get off. 

Anonymous
  • Dear JM, I'm going to tell your husband to give you a spanking ! Despite the worrying time you have given yourself about all the what ifs, yet another one has been put to bed. The greatest fear is fear itself, and there's no greater fear that that generated by your own imagination. You are in charge of the rollercoaster ride now ! You can control where it goes now, steer on to a level piece of the rollercoaster track and keep it there for as long as you can. Preferably throughout the chemotherapy and don't look too far ahead, don't be reading about the chemotherapy everyone is unique and reacts differently to the treatment. Just focus on getting through the chemotherapy treatment and face the next challenge when it comes. Think of when you started this journey and how much STRONGER you are now. If I don't get the best of news for myself on Friday then I may have a 20-25% chance to live up to 5 years. If it's good news then who knows how long I will have. Either way it's a damned site better than before the operation, I was struggling to get ensure milkshakes down. Believe in yourself, you have the strength of character to get through this and to beat it. Now give yourself a kick up the bum , prepare yourself for some crappy days but remind yourself they are just steps on the road to recovery. I will be thinking of you on Friday and looking forward to your updates as you start your path to beat the cancer. Love and hugs and best wishes to you and your family. Go for it girl!

  • Thanks again zappaman,

    You always say the right thing. Last Wednesday was the worst day of my life, I'd written myself off after having the bone scan done twice. Then after getting locked out in the cold and dark and losing my dog, I really thought someone 'up there' has got it in for me. But today the new consultant I have now was amazing, she said that the ct scan showed that although the tumour is very big it is contained within the breast and hasn't shown up in the lymph nodes on the ct scan. I was so shocked, it has taught me a lesson not to jump to conclusions. Plus as you said, if I get out of this mess I am going to be so strong, I won't be wasting my precious time on people who bring me down, in fact I'm not doing now! We say those words when we get married 'in sickness and in health' well my husband really has showed he meant it, he's been fantastic. I feel very fortunate.

    I'm not a religious person, but just incase I am going to hope and pray that Friday is good for you, I'll be thinking of you while I'm sat in the chemo chair. I'm thinking that even if you do get the 25 % news that you will be one of those 25%

    You are right again that anything is better than the before, im hoping that you are managing to get some nutrition in your system now, I am force feeding myself, honestly I got on the scales this morning and was disappointed to have lost another pound! That was a weird feeling. I'm sure I'll get my appetite back soon. Right now food is a fuel.

    I am ready for the crappy days, bring them on, because if I'm having a crappy day, I'm hoping those little cancer cells are having it crappier, they've been squatting in my body and it's time to go.

    Warm wishes to you and your family too.

    Xx