The rollercoaster continues.

2 minute read time.

Saturday 7th January.

I am sitting in bed writing this blog, absolutely shattered, I only got two hours sleep last night as my husband and his friend got back from their 'couple of drinks' last night, or should I say this morning at 1am. I was so pleased he went out as he's been amazing lately, and really deserved a night out, but I sat up waiting to see if they needed me to collect them as we live a little way from our local town and the taxi service isn't great, by half past midnight I gave up and went to bed, of course they came in just as I was getting to sleep. Then his friend who slept in the downstairs bedroom coughed and snored all night! I did get my revenge though at 7am when I got up and put the radio on, I felt a bit mean, but he knows my wicked sense of humour. 

Today has been a long day, husband with a hangover, weather gloomy and my daughter having contractions on and off all day, all I wanted was to be with her, just a simple normal thing but impossible as I need to be here Monday and Tuesday and she lives too far away to get there and back. I feel so angry and upset, it's not just me this cancer affects, it's my daughters and husband, I can't put into words how sad I feel tonight. Every time they message and send a photo it's breaking my heart, I've had photos of her sat in the delivery suite, video messages, its lovely and they are doing their best to make me feel 'there' as much as they can, but I just want to cry. I will never be able to be there with her at the birth of her first child, I can never get that back and I know people mean well when they say that going through this treatment means I will have a future with them, but right now it's not helping as even that's not a certainty, nothing is certain in my life, all the plans I make end up falling apart, and eventhe little plans I do dare make now I worry about something going wrong.

I am so, so grateful to be able to have treatment, and the medical team are wonderful and encouraging but wouldn't it have been so lovely if this whole mess hadn't happened. Wonderful for my family.

Anyway I'm going to try to read a book to pass some time and hope for some good news, I'm just feeling sorry for myself tonight, and I'm verybcross with myself for feeling like this but I'm sure that after my chemotherapy session on Tuesday when we are driving to visit and stay with her I will feel very very happy. Roll on Tuesday/Wednesday, it's not far away now. Surely that little plan won't get spoiled.

Stop this ride ... I want to get off!!!




Anonymous
  • Sometimes there is nothing you can say to help someone feel better, so I'm not going to try. But I am offering an outstretched hand for you to hold, a gentle reminder that we all know how hard this is, and that we are here for you, every step of the way ((((((((((hug))))))))) xxxxx

  • FormerMember
    FormerMember

    every once in a while I allow myself to fall into a dark place. I know it's not a good place to be but I own that. I was once so bitter with my husband after he said he thinks he could handle the chemo because I was doing so well. I ended up saying "maybe you should do it then" he then went on to say with words of encouragement that there was a success rate of 75% for my cancer cure. I told him that I was going to buy 100 parachutes for all of my friends and family and that 25 of them will not open. I admit that I was terribly (mean) & wrong but somehow justified it cause I was having a bad day. We laugh about it now. Anyways, it's okay to fall into a horrible place once in awhile...just don't stay there! I hope my post made you laugh a little and enjoy that new Grandbaby

  • JM, I wish you a hopeful New Year, make some wishes and hope and pray that they come true. Another down day, a bit of self pity, but you have retained your sense of humour and you will pick up. I think our situation brings into focus just how fragile life is and it comes with no guarantees how long we get. We have plenty of time to think and the mind can run amok, having some perverted pleasure in making us worry about everything. I've just gave up worrying anymore because most of the things I was worried about I have no control over. I stopped getting too upset when plans don't work out and i feel more at peace with myself. My scar wound from the surgery started leaking stuff last week and the practice nurse said I have an infection and put me on antibiotics for a week. Back to see the nurse tomorrow, the nutritionist nurse didn't phone last week, the 3 stitches holding the jejunostomy feeding tube in have all fell out, I have held it in place with micropore tape I will phone tomorrow to tell her. As I said I'm bloody passed worrying anymore. I hope the rest of the chemotherapy goes well for you and your hopes with your family are fulfilled. You're getting through this rollercoaster ride. Hugs and best wishes to you and your family.

    Kind regards Frank