Despair, despair, despair....

4 minute read time.

Wednesday 16th November 2016

I am thinking this might be a short blog, do I really need to put 2016 on the date, does the year matter?

I didn't think I could feel much worse that I did on Monday, I didn't think I could be scared anymore but today I felt worse and I was scared again. 

I feel like my horizons are closing in a little every day, I feel that despair when something happens that doesn't feel right. Today the bone scan was the culprit, after a very long drive we stopped at a beach on the way to walk the dogs and eat a roll, or rather force down a roll. A beautiful beach, it was windy and rainy, but beautiful all the same. But I was filled with utter sadness, there was a lovely old couple drinking coffee out of a flask in their car watching the waves crashing in, not talking, just smiling, content with each others company. I couldn't help feeling envious of them, but very glad for them at the same time. Last time we were here the sun was shining, in more ways than one.

We went on to the hospital and to the appointment. We got parked, the parking angel was with me today, I think she was feeling bad about deserting us yesterday when I called on her. I was seen early, the radioactive fluid was pushed into my veins very gently I might add, and off we went to another beach to walk the dogs to try to kill the three hour wait for the scan. 

The cafe opposite the beach was open, that was a lovely surprise, quite often in Wales they close down all winter, so after another walk on the beach we sat in the cafe and did a couple of crosswords. That passed the time, well nearly, we had another walk before heading back to the hospital. I think the parking angel was on overtime, we got another space.

More crossword puzzles while waiting, then the dreaded scan, I had a bad feeling about this one. I was put on the bench and told the scan would last 22 minutes and that they might have to do some more at the end.

All the time I was thinking, please not the extra scan, please not the extra scan, if I have an extra scan then surely thats not a plus? Guess what, the lights went on, the machine lifted up and then she said it, she said those words that sent me right back down..."err, we need to pop you back into the scanner for another scan, it'll be 18 minutes, is that ok?" What was I supposed to say? Actually no, its not alright, how can it be alright?

So back in I went, totally devoid of any emotion other than despair. Total and utter all consuming despair.

After the scan, we had the long drive home. I was in shock and so was Steve when I told him they'd put me in the scanner twice. What an awful journey home, especially when I went into the fuel station to pay and it was all decorated with christmas things. I just kept trying to find something positive to grab onto, but try as hard as I did, nothing was happening there.


Fast forward a couple of hours and  I'm sitting here in front of the log burner writing my blog, the little dogs are all sleepy and our run away cat has returned, he's come back fat, so I think we've been downgraded to his second home. I'm nice and warm, apart from my feet, and I do feel a little better, I think its pouring my feelings out on here that makes me feel calmer.

 I shouldn't say this but as I'm being honest...the thought has crossed my mind that if I didn't have my wonderful husband, daughters and a grandchild on the way...well you know how it goes. I'm sure I'm not the first person going through this to feel like that, and I'm sure I wont be the last.  But that would be selfish of me, and I am not a selfish person. Nothing could ever be worse than how I've felt the last few days, so on the up side surely things can only get better.

One good thing that happened today is that my father didn't phone me! I'm hoping that he has forgotten about my 'problem' because I'm fed up of repeating myself to him, over and over again, but he never remembers things I want him to. Be thankful for small mercies. Today I am thankful for his memory loss. Its kinder for him on this subject and it was easier for me today. Will somebody please stop this ride...I want to get off.








Anonymous
  • Dear JM you have been so strong and as I said before it's normal to feel the way you do. They might have done two scan's because they screwed up the first one! Have you had a PET scan? When they bring the radioactive isotope you are getting injected with in a metal box and once you get injected they all run away from you and you are left in a room for an hour on your own. Then when you are ready for the scan they all keep their distance from you and you are not to go near pregnant women or children after the scan and stay away from public places. I laughed when I read the guidance and said to my wife "and they are injecting me with that shit!. At least you could have go for a coffee in a public place, I had to go straight home. I asked my brother who was driving if he and my wife wanted me to get in the boot, would they feel safer. I know when I had my endoscopy and after the 30 minutes of recovery I was called into the room and the doctor who took the biopsies said " are you here on your own " It wasn't going to be good news. You go through the waiting and your mind can run riot, and it's just as mad when you have been told. The old mind just seems to love a drama, nothing simple. I've had days over the last two weeks since being discharged on 15th Oct where even liquid won't go down and I puke it back up and I can't enjoy eating or drinking. I would like to curl up in bed and make it all go away,but I can't because I have a stoma on my left side and the surgery scar's on the right and I've got to sit up in bed to avoid acid reflux. Then I have times where I can swallow soup OK or drink a latte without it sticking in my gullet or new stomach and the world seems a better place. I am also enjoying the log stove and I'm going to try to have a hot chocolate before bed. Your stronger than you think, to have got this far you must be and that strength will see you through. Love and positive thoughts to you and your family

  • Oh my goodness zappaman, you made me laugh, about the PET scan, but then cry when I read what hell you've been going through lately, and not even being able to curl up and get comfortable.

    If you'd seen me having my coffee in a public place you would've laughed, As we went in my husband is saying to me "Don't touch the door, don't touch the door!" We sat down, alcohol gel straight out on the table, detol aerosol spray poking out of my bag... and guess what, we were the only ones in the cafe. Probably scared anyone else off from going in.

    My main issue at the moment is that this damn lump is getting bigger and is painful at times and there's not a thing I can do about it, if I couldn't see it I would feel better. But reading what you're going through I should be grateful that I can get a bit comfy in bed all be it with my bra on 24/7 plus I can eat the 'surprises' that my husband is making, avocado on toast tonight with olive oil and a smattering of black pepper. Very posh! Ha ha, it was good though after that bloody car journey from hell.

    Im going to go and pop a sleeping tablet because my husband is worried I'm getting to sleep too late. So goodnight and thanks for the laugh, and the reality check.

    Warm hugs to you and yours.