Biopsy results day and the conveyor belt of life.

3 minute read time.

4th November 2016.

Ive always imagined that when we are born we get put on a big huge long conveyor belt, (I have a good imagination) and God willing hopefully we get the chance to travel along to the end without too many wobbles along the way, I know sadly that people do fall off the conveyor belt far too soon and that is cruel, I just never imagined that my conveyor belt might actually stop for a while, make me get off, give me a huge devastating shock, and then decide wether to let me get back on again. Thats where I am now. I'm going to be here for a little while waiting, before I find out if I'm allowed back on eventually, or if I get put on one going in a different direction, this one I might fall off at any given time.

I got my diagnosis on 4th Nov 16, after six months of tests, I've always had lumps in the past, two begnine removed years ago. This was started off from my routine 50 year mammogram, lots of needle biopsies, waiting, VAB, more waiting, given the all clear in September.  Calcification in the right breast, no changes so ok, begnine lumps in left breast, not a concern. Come back in a year for a check. Lovely.

Then a lump came up on my left breast, I left it thinking the left side wasn't a concern, after a month i had it checked out, it had suddenly got rather large, but it very much looked like another cyst, so back to the hospital just to be sure, it was drained, what a relief, it was gone, but as the consultant checked again with the ultrasound, she found another lump hiding under the cyst. So two more needle biopsies and back for results on the Friday. By then the cyst had returned, quite bruised and sore.

I was almost sure it would be another begnine lump, so sure that I'd felt confident enough to plan a trip out to some local gardens afterwards, my husband was with me, my eldest daughter and her partner were down stairs in the cafe. 

I wasn't expecting to be told it was a grade 3 cancer, invasive. I didn't really take anymore in, just sat there with that feeling that this was happening to someone else, not me. How could it be me? I'd had the all clear so recently, I've never smoked, I don't eat meat, don't drink much, I ran a 5k park run a month ago, not much slower than my daughter, and she's fit, followed by a 15 mile bike ride, I really do look after my body because its the only place I have to live...how could this be happening? 

After being shuffled through to the 'sad news room' as I think of it, and being told that mastectomy on 22nd followed by radiation and chemo was the most probable way forward my husband went to get my daughter (who is due to give birth over Christmas) and her partner. 

There were shocked tears, hugs but also encouraging words. I wanted to carry on and go to the gardens, so we did, I didn't want to dwell on things. I wanted a little more normality and some time to think about who to tell and in what order. It was a strange, strange day, my daughter was devastated and I was trying to carry on as normal for her sake, but she is in the medical profession and works in operating theatres, as a senior ODP, so I couldn't fluff over things with her.

We eventually went home and broke the news to family and people we thought needed to know. Made dinner and watched home movies from when my daughters were babies. Her partner found that very amusing. It was nice to see them all smiling but I found it quite upsetting as there were clips of my mum on there, the  pictures are one thing, but hearing a voice from the past that you loved so much and long to talk to again was a real toughie. 

A bad nights sleep followed, I resisted the temptation to google anything. So that was my diagnosis day over and done with.


Anonymous
  • JM don't wait to see if you are allowed back on the conveyor belt, decide to jump back on it give yourself permission! My wife had a small tumour removed from her left boob 2 years ago and followed by radiotherapy she had a check up last month and still clear. I then got diagnosed with oesophageal cancer back in July, you read my blog (zappaman). My wife has been amazing her strength, courage and support is helping me through this. I'm only 6 weeks after surgery and have good days and not so good days, but we'll get there regardless how long the journey on the conveyor belt. So your seat is reserved on the conveyor belt you just forgot where it was for a while with all that is going on. Forget the a**holes who don't help and let your husband and wonderful daughters back on to the conveyor belt. Love and hugs to you and your family.

  • Thanks zappaman, I hope that your good days get more and more, you and your lovely wife have really been through it! Think how strong we will all be when we get through this. I'm going to make a few changes thats for sure.

    You're right, Im going to spend my time around positive people, its not good to listen to comments from pessimistic people, unfortunately there have been a couple and one was my brother yesterday, he doesn't mean it im sure, but his comment lead to a 10 hour melt down, I think he's got me dead and buried already! It was a quiet cry while walking the dogs in the dark, followed by a family meal where it was a struggle to swallow each mouthful because I wanted to cry, every smile was planned, I was totally exhausted by bed time but then there was no blessed relief through sleep.

    On the plus side I have had a much, much better day today, My daughter has been brilliant and my husband. Also I have found quite a comfort from being on the Macmillan site, it's truly amazed me because I'm quite a private person, and somehow joining Macmillan was the first step for me in accepting that I have cancer, I felt if I joined the site it would make it all real, and that scared me, I know now that to get back to what I can of my old life I have got to move forward and get back on the conveyor belt of life.

    Thanks for the kind words, I find it therapeutic tapping away on the keyboard, it keeps me busy when I can't sleep and everyone else is. It is such a bonus when someone replies.

    Sending warm wishes and a hug to you and yours.

  • FormerMember
    FormerMember

    Thank you your lovely comment on my blog JMC04, I was really touched. I don't put too much thought into what I write but I write whatever is on my mind. They are my random thoughts but I have found that putting my emotions in black and white has somehow helped me cope over the last few months and to keep moving forward to the next stage. I forget that others would be reading it but I was so touched by your comment.

    I barely remember the day from diagnosis to the operation but I know they were highly emotional. I am not sure at which point I accepted and it took me a long time before I could even text the C word! My girls are 5 and 9 so we became use to referring to it as 'the lump'. I remember I had to hold my tears until the girls were asleep and then I my poor husband would stay up with me as I cried all night. It is the fear of the unknown and having no control. I did find that once I had the dates for operation, treatment, it was a little easier, probably because I could see what the 'action plan' was to deal with the problem. I am a newbie to blogging but I have found it very helpful for me to just write everything down. It was almost as if once I put everything down in black and white, I could move on to the next step. It's only been 6 months for me since diagnosis so it is still very raw but although it is a summer I will never forget, I know I have come a long way since then. It is challenging times like this that we realise how lucky we are to surrounded by the support of our loved ones and also at the end of it, how strong you realise you have become.

  • FormerMember
    FormerMember

    Sending a big hug your way xx

  • FormerMember
    FormerMember

    Massive hugs.

    As Zappaman said, don't wait to be asked back onto the conveyor belt, get back on it yourself. Cancer is a shitty disease that tries to take control, don't let it.

    When Mum was diagnosed 2 years ago, we made a plan. It wasn't going to win, it wasn't going to rule her, it was going to be on her terms. When the oncologist told her she would probably need blood transfusions, she decided that she wouldn't - and she didn't. What I'm trying to say, though not very well, is stay positive. You and your awesome family have got this xxx