A ray of hope.

5 minute read time.

Friday 18th Nov

I was given a ray of hope today, and it was gratefully received. I went from terrified to hopeful in a few hours and I feel blessed.

Yesterday I convinced myself that this cancer had spread and that there would be no treatment for me. I'm not stupid, I know it happens, it can happen to anybody young and old, I'm not special. The lump was huge and painful and scaring the hell out of me. Today everything was explained in a way that made sense in my crazy out of control head. It was like I started to breathe again after holding the longest breath ever, and that breath so calmed my mind.

Chemo first for me is the best way forward with my type of cancer, then she put a metal clip marker in the tumour incase it  shrinks so much they can't find it. That sounded so good to me. The consultant explained that this sort of treatment can be extremely effective in shrinking tumours and any stray cells, I have to believe that it will be the case for me. 

I really thought it was in my lungs also, for weeks I've not been comfortable in my chair, back ache, I never thought much about it until two weeks ago, then that was it, that was the reason, it's in my lungs! I'm going to have to try to not to over think things, this will not take over my mind, I will not let it. 

I had such support from the lovely people on the breast cancer forum, and I felt quite emotional when I read all the replies after I updated. Ive never had a lot of friends, due to my upbringing, just a handful of close friends, but I don't live near them anymore, so this has meant the world to me.

It was another long day though, we took the dogs because we weren't sure how long we would be, so after the encouraging news we walked them in the nearby park and headed for lunch, a lovely food emporium that just makes simple tasty food, very rustic, everything there is home made. We had bubble and squeak with a poached egg on top, something simple, but it was the best meal I've had in a very long time, it did the trick, I had an appetite for the first time in 14 days It didn't feel like I was swallowing sawdust, and that felt real good! Plus I could feel my husband relax, that was a gift to me.

It was nearly dark when we got home, it took a while to explain to everybody the change in plan for the treatment and why, then we reheated last nights dinner that never got eaten after that phone call. 

Certain times on Friday's will always be a reminder to me that life can pick you up shake you about and spit you out a different person 9.20am, 10.15am and 10am on Fridays also 6.45 pm on Thursday. Funny that today I thought that exactly two weeks ago I was sat in the same waiting room, unaware of the battle that was coming. I was so glad it wasn't two weeks ago. Then I thought, I am amazed that I've got through this stage of not knowing, the awful awful lows.How did I manage, I didn't think I had it in me.  I think I am a different person, and so is my husband, we look exactly the same, but we are stronger. Whatever happens at least from now on things are moving, and I feel a little in control, I'm moving forward now and not staying still, I will never be in that first two week stage again, I got through it, and  the consultant is looking out for me, and that is a wonderful thing, In effect, a stranger is trying to save my life. I still can't believe that. I look at people differently now, I understand that people who look happy and normal could easily be carrying around terrible burdens and sadness.

I am enjoying my positive news today, and I know it is a fragile thing, but in my shoes I am taking every little bit of hope and I'm going to squeeze the hell out of it. I'm unbelievably excited about seeing my daughter tomorrow in her first home, and helping her unpack. I didn't think it would be possible to go, so that's another gift today brought. We seem to be living in the car lately, but these are the most important journeys 

ever in my life. Some of them incredibly sad and exhausting and some incredibly hopeful, but each one moving us  forward.

I have rambled on tonight, I kind of hope nobody's reading this ridiculous twaddle, it's for me to hopefully look back on one day and remind myself of what happened to me one ordinary Friday morning and how I got out of the mess.

I will end on a lighter note, anybody who knows me or my husband will know that we had another battle on our hands for the last three years, or rather my husband did, the battle of the moles, every morning he would look out of the window and give a mole hill report, oh my goodness it's been almost a hobby, an obsession,I don't get it, we live in the country side, there are fields all around us, the moles can't help it, they are kind of cute. Every method has been tried, we even had a hoover hose sticking out of the lawn once, it looked very dodgy and I didn't ask, long conversations about moles with anyone who would listen, strangely not a word about moles in the last 14 days, not a word, bliss, and there are 5 hughmoungus mole hills out there. I am very thankful for small blessings, and so are the moles.

 Bed time now, long lovely day tomorrow. Not back till Monday or Tuesday.

Thank you for slowing the ride, it's so nice to have a rest. 




Anonymous
  • Jm , it's great to see the change in your writing, hope is a marvelous thing. I've only just seen your replies to me and I thank you for your kind thoughts. I didn't intend to make you feel sad so I'm sorry for that. Despite my eating problems theyre nothing compared to what some people have to go through and I am convinced that it will get better. I am so happy for you and your family, it is an incredible journey ( rollercoaster ride ) that we are all on. As you have experienced the downs it's great that you are getting some ups. There will be more of both on our journeys,lets hope more of the ups. This site is brilliant for letting us let off steam and give each other support. When I read some of the posts it makes me appreciate how lucky I am despite being peeved about the swallowing difficulties. My doctor emailed the consultant surgeon on Thursday and he reminded her that I should be on a soft foods diet, but he would get a specialist nurse to call me on Friday to get more information from me. I'm still waiting for the call ! I m not worried and it gives me ammunition to have some fun when I see them on Friday. I'll ask him how soft is soup and water, is that OK for my soft foods diet ! Then why doesn't it go down without sticking . We have to laugh when we can it helps me keep sane. I will get the results and final prognosis on Friday, regardless of the outcome life goes on. I'll remind him he promised I would be able to have Christmas dinner. A chipolata as a starter, a sprout and roast potato and Turkey wing as the main, and I'm spoiled for choice for dessert. Seriously though, enjoy the times you can I know I am going to the best way I can and count my blessings. Two weeks before I went in for the operation an old friend wished me good luck. Whilst I was in hospital he was diagnosed with a brain tumour and sadly passed away last Friday. So don't feel sad reading any of this, try like me to feel lucky enough to still have hope, you have so much to live for especially a new grandson to look forward to. What a Christmas present ! I look forward to reading your posts as we continue the journey. Hugs and best wishes.

  • Hello zappaman,

    Thanks again for putting things in perspective and a bit of Christmas lunch humour about. You're right there's always someone worse off.

    I wasn't going to go on here while I was away but everyone is asleep and I'm sitting here wide awake so here I am. On my phone, it's not as easy as the iPad.

    My husband is deep into DIY for our daughter sorting out bits and bobs while we can, keeping busy. He is working so hard bless him. I went shopping with my daughter to get essentials, Damn it was Christmas everywhere.

    While we were out the 'boys' decided to go to B&Q, guess what? We all ended up locked out of the house, with the dogs inside!

    So it was pitch black freezing cold and we had to call the locksmith out on a Sunday. Everyone was annoyed but I was so calm, I just kept thinking, minor problem, easy to fix. 17 days ago I would've been annoyed too. Anyway a very dodgy looking chap turned up, not even a torch, no sign that he was legitimate, he wanted to drill the lock to get in and charge a fortune for a new barrel lock, we questioned him, and suddenly he found a new way and popped open the door with a 'tool'

    We went in and let the dogs out but the gate had been left open so my little dog disappeared, not used to traffic and the area, I honestly did think things couldn't be worse at that point. Luckily after a few minutes of panic my daughter found him in a neighbours garden.

    Then my brother phoned and upset me again. He'd been drinking and was on the way to the off licence. So the lovely weekend plans really aren't going to plan at all!

    I seem to get a 'high' followed by a 'low' that seems to be how it's going at the moment.

    I will be thinking of you Friday and hoping the results and prognosis are good, I had an MRI scan on Friday, and I'm expecting a phone call this Friday with the results, knowing my luck something will show up, but they are going to start the chemo anyway, and hope it zaps anything that has gone astray, so all I can do is keep everything crossed, for us both.

    I'm just wondering what tomorrow will throw at me, whatever it is, I'll throw it back and then some!

    What a shock about your friend, so sorry to hear that, and it happened so quickly.

    Going to try to get some sleep now and hope tomorrow is a calmer day.

    Sending a warm hug to you and your family.

  • Hi JM, I'm glad you had a nice weekend and a bit of unexpected drama and excitement. Sorry to hear that your brother upset you but glad to hear that your dog's OK. Yes locksmiths can be rip off merchants, I got stung several years ago for about £400. All he done was bust the upvc door open and replace the lock and charge extra because it was a Saturday. I'm keeping my chin up and being as positive as I can and wishing Friday hurry up. I hope that your chemotherapy treatment goes well for you and I'll let you know how Friday goes. I'm looking forward to a visit from one of my sisters who lives in Kent. She and her husband are traveling by train to Edinburgh to visit my oldest sister. It's quite funny me being 57 and the youngest in the family, I have 5 sisters and 2 brothers. Almost all of them have retired and thankfully have helped me out financially as well as great support. I have really enjoyed your blogs and messages of support to me, it's a great community website for us unfortunate ones. As one of my friends said, when you heard of someone you know had cancer years ago it was a shock, now it seems to be a bloody plague! Well I'll have to go and save the stove from going out and get ready for my visit to the local nurse. Bye for now, onwards and upwards. Best wishes and hugs to you and your family. I hope your husband is better at diy than me, I do a bit of bodging

    But it is free.