I am not sure if anyone will visit this page , and that is ok. IO want to do this for me and my very dear and nearest. To keep me sane or at least I hope it may . I have spent the last three weeks away from work . To date I have been a passionate and loyal worker who has never taken more than four weeks off i ( due to a broken bone) in 15 years other than minimal maternity leave with four children. I have never felt the need for it regardless of sleepless nights or feeling a bit rubbish BUT I had a lightbulb moment Four weeks ago , I sat there while the consultant gave me horrendous timelines of life for my gorgeous mum. 5-6 months without treatment or 9-12 moths with or at best a couple of years if full chemo responsive ....say again ...what did you just say ??? Those odds ??? I have always thought ohhh you should not do the chemo if you are ill and then only gain little life ...lets face it I am sure we all consider quality of life is way above amount of life , but how can you make that calculation?? if you have not had at least on around of treatment ?? At a glance my mum seems to have responded to cycle number one or at least we have fitted in a trip to Taunton to see her ill brother from the north of the county ,we have been to to st annes to visit her unwell sister, the garden centre top choose plants, undertake a wonderful garden project and had beautiful walks... I suppose that is why people opt for chemotherapy as first line , quick and well known . Me and my sister and brother feel that second line immunotherapy will be a second line at some point but the key message at this time is not to run too fast ahead of the person with the disease but to keep a healthy pace that you are informed at making the journey the least problematic as possible , as it is the journey that counts for all .....stay strong,, stay true and believe in your viewpoint and follow your thought to form xxx
